ZVEZA EUROPSO

Main EU Legislative Proposals: We operate in the health sector for the better recognition of psoriasis and arthritis psoriasis within the existing health policies. EUROPSO activities are aimed at protecting the rights of patients, to ensure equal access to treatment and the right therapeutic path. EUROPSO would like to represent the psoriasis patient voice within the “EU4Health Programme” (the Regulation (EU) 2021/522 of the European Parliament and of the Council of 24 March 2021 establishing a Programme for the Union’s action in the field of health (‘EU4Health Programme’) for the period 2021-2027, and repealing Regulation (EU) No 282/2014 (Text with EEA relevance)).

Communication Activities: In a recently conducted EUROPSO Observatory project, EUROPSO found out that the number of clinical trials across Europe is in slow but constant decline in recent years. In addition, patients lack information about the clinical trials that are on-going in their country, affecting their possibilities to actively participate in any trial or contribute to it in a meaningful way, giving a unique patient perspective. EUROPSO would like to present these findings at the EU level, initiating an open discussion with representatives from different political parties and EU countries. The activities that could help in fostering conversations with the Members of the EU Parliament and other decision makers are the following: - organising or participating in meetings, conferences or events related to psoriasis - participating in consultations or hearings regarding patient involvement or giving patient perspective to policies related to improving the quality of life of psoriasis patients or in line with any of the goals from EUROPSO’s Constitution - organising communication campaigns, platforms, networks or grassroots initiatives to raise awareness of psoriasis, psoriatic arthritis and challenges that patients and their families face in relation to this disease - preparing or commissioning policy and position papers, amendments, opinion polls, surveys, etc. EUROPSO plans endeavour a patronage from different MEPs in order to organise a panel discussion in the EU Parliament in May 2023, during the European Psoriasis Week. There will be educational materials developed around and for this event, helping all participating sides prepare for the discussion. There will be posters, press releases, patient information leaflets, a report on the EUROPSO OBSERVATORY Project key findings and recommendations for the policy makers and various other materials that would support the event.

Inter-institutional or Unofficial Groupings: N/A