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Youth Cancer Europe

Acronym: YCE

General Information

Identification Code: 988772631423-40
Website: http://www.youthcancereurope.org
Entity Form: Foundation
Registration Category: Non-governmental organisations, platforms and networks and similar
Registration Date: 5/2/2018
Last Update: 8/24/2023

Mission & Interests

Goals: Youth Cancer Europe is made up of a network of youth cancer organisations from across Europe, focusing on the most urgent unmet needs of young people with cancer: -- Working towards age appropriate and equal access to effective cancer treatment across Europe; -- Improving long term follow-up and the quality of life of cancer survivors; -- Creating a network of patient advocates to increase the political and regulatory influence of young people with cancer. Youth Cancer Europe fosters direct contact between different collectives, ensuring that the voices of patients and survivors become a key part of how treatment and after-care is shaped across the continent. The organisation is committed to speak with a single representative voice of young people with cancer and together with other relevant stakeholders, through strategic partnerships in Europe, engage with EU policy-makers to influence European health and research policies. Youth Cancer Europe prepares young people (...)
Interests Represented: Does not represent commercial interests
Interests:
  • Public health
  • Research and innovation
  • Youth
Levels of Interest:
  • european

Activities

Main EU Legislative Proposals: Areas of EU Health and Research currently followed by Youth Cancer Europe are: Cancer; Rare diseases, Heath systems and services, Personalised medicine, Environment and Health, Public Health, Global Partnership Youth Cancer Europe also follows the following EU initiatives and actions: Horizon 2020, Innovative Medicines Initiative, Patients’ rights in Cross-border healthcare, European Reference Networks, eHealth, Health Technology Assessment, Health systems performance assessment as well as initiatives in the areas of Promoting good health, Nutrition and physical activity and Mental health and the legislative area of Pharmaceuticals and medical devices.
Communication Activities: Relevant projects: Youth Cancer Europe Open Space Summit 2014, Bucharest Youth Cancer Europe Advocacy Masterclass 2015, Cluj-Napoca Youth Cancer Europe @ Untold Music Festival manifestation 2015 Youth Cancer Europe Patient Summit 2017, Vilnius YCE Structured Training on the Fundamentals of EU Policymaking, 2018 Brussels European Parliament policy event on financial discrimination of long term cancer survivors, October 2018, Brussels Youth Cancer Europe Leadership Summit, July 2019, Budapest European Parliament policy event on cross border health, November 2019, Brussels European Beating Cancer Plan public consultation launch, Key note speech in European Parliament Hemicycle, February 2020 European Parliament BECA hearing, January 2021 (Fertility / Mental Health) European Parliament BECA hearing, April 2021 (Cross Border Health) EPP hearing (The Right to Be Forgotten), May 2021 Cancer & Fertility: a YCE advocacy project, 2021 - 2022 Cancer in time of war: Ukraine war crisis response operations, 2022 Relevant PR & Communication Activities as well as publications: Open Space Summit Key Outcomes Report 2014 December The Role of Youth in Cancer Policy, YouTube videos since 2016 Young cancer patients advocate for improved care September 5, 2017 article in The BMJ Youth Cancer Europe: White Paper, October 2018 Chemo Brain: Cancer & Mental Health Webinar, January 2021 Cannabis & Cancer: Let's Clear the Smoke! Webinar, April 2021
Inter-institutional or Unofficial Groupings: Cancer

Head Office

Address: Calea Manastur 42B
City: Cluj-Napoca
Country: ROMANIA
Phone:
Indic Phone: 40
Phone Number: 745821573

EU Office

Address: Calea Manastur 42B
City: Cluj-Napoca
Country: ROMANIA
Phone:
Indic Phone: 40
Phone Number: 745821573

Financial Data

Closed Year:
Start Date:
End Date:
Funding Sources:
  • Donations
  • EU funding
  • Grants
Contributions:
  • Amount: 0
    Currency: €
    _id:
    Buffer:
    0: 104
    1: 64
    2: 61
    3: 42
    4: 158
    5: 212
    6: 182
    7: 32
    8: 86
    9: 90
    10: 34
    11: 242
  • Amount: 0
    Currency: €
    _id:
    Buffer:
    0: 104
    1: 64
    2: 61
    3: 42
    4: 158
    5: 212
    6: 182
    7: 32
    8: 86
    9: 90
    10: 34
    11: 243
  • Amount: 0
    Currency: €
    _id:
    Buffer:
    0: 104
    1: 64
    2: 61
    3: 42
    4: 158
    5: 212
    6: 182
    7: 32
    8: 86
    9: 90
    10: 34
    11: 244
  • Amount: 0
    Currency: €
    _id:
    Buffer:
    0: 104
    1: 64
    2: 61
    3: 42
    4: 158
    5: 212
    6: 182
    7: 32
    8: 86
    9: 90
    10: 34
    11: 245
  • Amount: 0
    Currency: €
    _id:
    Buffer:
    0: 104
    1: 64
    2: 61
    3: 42
    4: 158
    5: 212
    6: 182
    7: 32
    8: 86
    9: 90
    10: 34
    11: 246
  • Amount: 0
    Currency: €
    _id:
    Buffer:
    0: 104
    1: 64
    2: 61
    3: 42
    4: 158
    5: 212
    6: 182
    7: 32
    8: 86
    9: 90
    10: 34
    11: 247
  • Amount: 0
    Currency: €
    _id:
    Buffer:
    0: 104
    1: 64
    2: 61
    3: 42
    4: 158
    5: 212
    6: 182
    7: 32
    8: 86
    9: 90
    10: 34
    11: 248
Total Budget: 612399
Grants:
  • Source: EU4H Grant Agreement number 101056918 - EUCAYASNET
    Amount: 0
    Currency: €
    _id:
    Buffer:
    0: 104
    1: 64
    2: 61
    3: 42
    4: 158
    5: 212
    6: 182
    7: 32
    8: 86
    9: 90
    10: 34
    11: 240
  • Source: HORIZON Grant Agreement number 101057482 - Strong-AYA
    Amount: 0
    Currency: €
    _id:
    Buffer:
    0: 104
    1: 64
    2: 61
    3: 42
    4: 158
    5: 212
    6: 182
    7: 32
    8: 86
    9: 90
    10: 34
    11: 241
Current Year:
Grants:

    Membership Information

    Members10 Percent: 1
    Members25 Percent: 2
    Members50 Percent: 1
    Members: 4
    Members F T E: 1.100000023841858

    Structure

    Structure Type: Structure
    Is Member Of: www.youthcancereurope.org/network/
    Organisation Members: YCE is not a member of any umbrella organisations YCE is collaborating in the following networks: - https://wecanadvocate.eu - https://www.europeancancer.org (several focused topic networks) - https://www.euhealthcoalition.eu

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