World Marrow Donor Association
Acronym: WMDA
General Information
Identification Code: 843707428180-27
Website: [object Object]
Entity Form: Association
Registration Category: Trade unions and professional associations
Registration Date: 8/31/2017
Last Update: 1/8/2024
EP Accredited Number: 0
Mission & Interests
Goals: Our Vision
A world where access to life-saving cellular therapies for all patients is assured and donors’ rights and safety are protected.
Our Mission
We work with our members to ensure reliable provision of life-saving cells while promoting care and safety for both patient and donor.
Our Aims
• Optimising ‘Search, Match & Connect’: A global ‘Search, Match & Connect’ environment that facilitates the most suitable cell source for patients.
• Supporting global development: supporting members to develop and grow, so that more patients find the most suitable cell source.
• Promoting donor care: ensuring the rights and safety of cell donors are promoted and protected;.
• Ensuring quality: promoting quality and global collaboration through standardisation.
Interests Represented: Promotes their own interests or the collective interests of their members
Interests:
- Public health
- Research and innovation
Levels of Interest:
- global
Activities
Main EU Legislative Proposals: Development of EU Regulation in the field of tissues and cells (SoHo). Acceptance of the WMDA accreditation programme as tool to import cells to EU Member States
Maintenance and ongoing development of a global application to report Serious (Product) Events and Adverse Reactions – S(P)EARs – after cell donation. Promote use of this application not only for therapies with cells from unrelated donors, but also for therapies with cells from related donors.
Communication Activities: Organisation of World Marrow Donor Day; an annual event to create global awareness for stem cell donation and to thank voluntary stem cell donors. Website address: https://worldmarrowdonorday.org
Relevant publications in scientific journals:
1. Donor Center Audits: Bone Marrow Transplantation (2022) 57:466–472; https://doi.org/10.1038/s41409-022-01563-3.
2.Serious Stem Cell Donation Events and Recipient Adverse Reactions Related to Severe Acute Respiratory Syndrome Coronavirus 2: Review of Reports to the World Marrow Donor Association (https://doi.org/10.1016/j.jtct.2023.05.020)
3.World Marrow Donor Association guidelines for the reporting of novel HLA alleles (https://onlinelibrary.wiley.com/doi/10.1111/tan.15048)
4. Impact of COVID-19 pandemic on global unrelated stem cell donations in 2020-Report from World Marrow Donor Association (https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8994088/)
Annual publications, available on our website: https://wmda.info (footer of the home page)
Inter-institutional or Unofficial Groupings: Artificial intelligence and digital,Cancer
Head Office
Address: Schipholweg 55first floor, unit 2
Post Code: 2316 ZL
City: Leiden
Country: NETHERLANDS
Phone: [object Object]
EU Office
Address: Schipholweg 55first floor, unit 2
Post Code: 2316 ZL
City: Leiden
Country: NETHERLANDS
Phone: [object Object]
Financial Data
New Organisation: false
Closed Year: [object Object]
Current Year: [object Object]
Membership Information
Members10 Percent: 1
Members25 Percent: 0
Members50 Percent: 0
Members75 Percent: 0
Members: 1
Members F T E: 0.10000000149011612
Structure
Structure Type: Structure
Is Member Of: https://share.wmda.info/display/WMDAREG/Database
Organisation Members: Worldwide Network for Blood and Marrow Transpantation: https://www.wbmt.org/
AABB: http://www.aabb.org/Pages/default.aspx
CBA: Cord Blood Association
EBMT: https://www.ebmt.org