The European Institute for Innovation through Health Data
Acronym: i~HD
General Information
Identification Code: 676053343264-27
Website: [object Object]
Entity Form: iasbl - international non-profit organizations
Registration Category: Non-governmental organisations, platforms and networks and similar
Registration Date: 6/22/2021
Last Update: 11/12/2023
EP Accredited Number: 0
Mission & Interests
Goals: The European Institute for Innovation through Health Data (i~HD) is a not for profit institute registered in Belgium. It is a membership-based organisation with members from pharma, healthcare providers, academic organisations, and works closely with patient organisations, healthcare payers, the health ICT sector and standards development organisations. i~HD develops methods, solutions and services that can maximise the value obtained from health data, to support innovations in health, health care and knowledge discovery, while ensuring compliance with legal prerequisites, especially regarding patient’s privacy protection. It tackles areas of challenge in the successful scaling up of innovations that rely on high quality and interoperable health data. It collates, develops and supports adoption of best practices in information governance and data protection, with special focus on the reuse of health data for learning health systems.
Interests Represented: Promotes their own interests or the collective interests of their members
Interests:
- Communication
- Digital economy and society
- Public health
- Research and innovation
- Single market
Levels of Interest:
- european
Activities
Main EU Legislative Proposals: Opportunities, stakeholder value and acceptance factors in support of the European Health Data Space
The adoption of the EU GDPR relating to the use of health data for research
The health sector implications of the Data Governance Act
Promotion of the Digital Health and Care Innovation initiative of the Digital Single Market Strategy
The health sector implications of the forthcoming AI Regulation
Communication Activities: The organisation and reporting of multi-stakeholder roundtables, focus groups and workshops discussing topics relating to the governance, protection, interoperability, sharing and quality of health data, for public health and research purposes. From these we collect requirements, use cases, success factors and barriers, approaches that could be adopted and stakeholder concerns, which we collate into policy-influencing reports and presentation materials. These have contributed directly into EC intelligence gathering as it develops the concept, governance models, operational models and later the implementation of the EHDS.
Promoting the importance of interoperability standards to different stakeholder groups, and promoting the importance of good data quality, so that health data is usable and useful for the big data opportunities that will be enabled by the EHDS. From these activities we understand the present barriers to standards adoption and data quality, the incentives that need to be triggered through future policy instruments, and we contribute this back into the European Commission for consideration, especially now in relation to the EHDS.
Working with multiple European projects and with multi stakeholder communities on the challenges and emergent good practices in complying with the GDPR when it comes to reusing health data for research, especially for big data networks. We are collating these adoption and compliance challenges, as areas for potential recommended improvement to a future revision of the GDPR. Many of these areas are also potential areas that the Data Governance Act might fill, so we additionally contribute input to the Commission on the implementation of this Act.
Contributing to webinars and online conferences, in person conferences, about topics that contribute to the European momentum and capacity for cross-border data sharing and analysis including trustworthy AIas input to support the adoption and compliance with the AI Act.
EU Supported Forums and Platforms: eHealth Stakeholder Group#E02769#https://ec.europa.eu/transparency/expert-groups-register/screen/expert-groups/consult?lang=en&groupID=2769 #MEMBER #C#Academia/Research
Inter-institutional or Unofficial Groupings: N/A
Head Office
Address: Merebaaistraat 10
Post Code: 9860
City: Oosterzele
Country: BELGIUM
Phone: [object Object]
EU Office
Address: Merebaaistraat 10
Post Code: 9860
City: Oosterzele
Country: BELGIUM
Phone: [object Object]
Financial Data
New Organisation: false
Closed Year: [object Object]
Current Year: [object Object]
Membership Information
Members10 Percent: 2
Members25 Percent: 2
Members50 Percent: 3
Members75 Percent: 2
Members: 14
Members F T E: 8.699999809265137
Structure
Structure Type: Structure
Is Member Of: https://www.i-hd.eu/community/members/
Organisation Members: i~HD is not a member of any organisation.