The Ehlers-Danlos Society

General Information

Identification Code: 908525545154-49

Website: www.ehlers-danlos.com

Entity Form: Non Profit Organisation

Registration Category: Non-governmental organisations, platforms and networks and similar

Registration Date: 1/13/2022

Last Update: 2/21/2024

Mission & Interests

Goals: The Ehlers-Danlos Society’s mission is dedicated to advancing and accelerating research and education in Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD). We support the development of effective and equitable EDS and HSD therapies and work collaboratively to improve the lives of individuals affected by EDS and HSD. Our vision is to create a world in which each person living with the Ehlers-Danlos syndromes and hypermobility spectrum disorders has the right treatment and care at the right time for their specific needs.

Interests Represented: Does not represent commercial interests

Interests:

Education and training
Public health
Research and innovation

Levels of Interest:

global

Activities

Main EU Legislative Proposals: Working in the Rare 2030 Work and member of the Stakeholder Network for Rare Diseases EU Health Policy, being part of Eurordis and Rare Disease International. Working with European colleagues on collaborative research and education programs.

Communication Activities: Working in the Rare 2030 Work and member of the Stakeholder Network for Rare Diseases EU Health Policy, being part of Eurordis and Rare Disease International. Working with European colleagues on collaborative research and education programs.

Inter-institutional or Unofficial Groupings: Disability

Head Office

Address: Office 735-37 Ludgate Hill

Post Code: EC4M 7JN

City: London

Country: UNITED KINGDOM

Phone:

Indic Phone: 44

Phone Number: 2038876132

EU Office

Address: Office 735-37 Ludgate Hill

Post Code: EC4M 7JN

City: London

Country: UNITED KINGDOM

Phone:

Indic Phone: 44

Phone Number: 2038876132

Financial Data

Closed Year:

Start Date:

End Date:

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Donations

Contributions:

Amount: 0
Currency: €
_id:
Buffer:
0: 104
1: 64
2: 60
3: 250
4: 158
5: 212
6: 182
7: 32
8: 86
9: 90
10: 15
11: 83
Amount: 0
Currency: €
_id:
Buffer:
0: 104
1: 64
2: 60
3: 250
4: 158
5: 212
6: 182
7: 32
8: 86
9: 90
10: 15
11: 84