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Partners For Patients NGO

Acronym: PFP.NGO

General Information

Identification Code: 145399550810-36
Website: [object Object]
Entity Form: Patient Association
Registration Category: Non-governmental organisations, platforms and networks and similar
Registration Date: 7/20/2023
EP Accredited Number: 0

Mission & Interests

Goals: We are 100% volunteer based. Our Impact: Helping Patients Access Medicines, Health Literacy, Clinical Trials & A Diagnosis. OUR VISION:Solving Humanity’s Greatest Health Challenges through Patient-Public-Private Partnerships (PPPP). We take pride in supporting the United Nations Volunteer (UNV) program. We are independent, impartial, and neutral. We are transparent and accountable. We are committed to diversity, equity and inclusion. We are an NGO, led by Patients who have expertise in Advocacy, Research & Policy. We Prioritize health through public health policies, good governance of health systems, education, health communication and health literacy.
Interests Represented: Does not represent commercial interests
Interests:
  • Competition
  • Digital economy and society
  • Economy, finance and the euro
  • Education and training
  • Employment and social affairs
  • Humanitarian aid and civil protection
  • Institutional affairs
  • International co-operation and development
  • Justice and fundamental rights
  • Public health
  • Regional policy
  • Single market
  • Trade
  • Youth
Levels of Interest:
  • national
  • global
  • sub-national
  • european

Activities

Main EU Legislative Proposals: Our focus is to help support the EU Pharma Legislation, keeping EU competitive with clinical trials: We Prioritize health through supporting public health policies, supporting good governance of health systems, education, health communication and raising awareness on the promising health literacy programs across Europe. We Keep working in the following areas: • Building sustainable clinical trial infrastructure and capacity (where it is needed; fit for purpose) • Upgrading clinical research skills to local workforce • Fueling local EU economies with clinical trials • Modernising Clinical Trials (Understanding Platform RCTs) • De-Centralized RCTs) Digital Health Outcomes: Patient Generated Health Data. Insight Generation: Societal, Economic, Ethical & Legal Perspectives To Support Reimbursement Decision-Making. PFP.NGO recognizes that health is an investment in human capital, social and economic development.
Communication Activities: Website. Word of Mouth. Lindekin. Email. SMS. Awareness Campaign. Access full CRM network of 10,000.
Inter-institutional or Unofficial Groupings: Cancer,Social economy,Competitive European Industry: long-term and sustainable investment

Head Office

Address: Gartenstrasse 95
Post Code: 4056
City: Basel
Country: SWITZERLAND
Phone: [object Object]

EU Office

Address: Via Bedea 11
Post Code: 6986
City: Novaggio
Country: SWITZERLAND
Phone: [object Object]

Financial Data

New Organisation: false
Closed Year: [object Object]
Current Year: [object Object]
Complementary Information: never received any funding. we are zero funded. we are 100% volunteer based.

Membership Information

Members10 Percent: 1
Members25 Percent: 1
Members50 Percent: 1
Members75 Percent: 1
Members: 4
Members F T E: 1.600000023841858
Info Members: We are focusing our efforts to advance health literacy in order to foster equitable access to healthcare for all, including people in vulnerable situations. Our programs include a global rotations track by matching an international mentor with a mentee. We are also proud to provide worldwide in-residency practitioners with a global therapeutic area leaders. Community Based Research Outcomes: Population Science and Natural History Studies. Our evidence-based practical approach helps create an equitable and inclusive learning environment for everyone. We embed an equity lens into the planning development and delivery of health literacy initiatives, which is applicable to online blended and classroom training.

Structure

Structure Type: Structure
Is Member Of: International Myeloma Foundation
Organisation Members: International Myeloma Foundation