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Myeloma Patients Europe

Acronym: MPE

General Information

Identification Code: 514101642770-73
Website: [object Object]
Entity Form: AISBL
Registration Category: Non-governmental organisations, platforms and networks and similar
Registration Date: 5/19/2021
Last Update: 3/19/2024
EP Accredited Number: 0

Mission & Interests

Goals: Myeloma Patients Europe (MPE) is an umbrella organisation of myeloma and AL amyloidosis patient groups and associations from across Europe. MPE has a number of broad aims including: -Collaborating on projects to the benefit of the myeloma community -Exchanging information and best practice -Helping to developing existing patient groups and encouraging and facilitating the setting up of new groups -Helping to shape appropriate health-related policies and initiatives on a European and national level -Ensuring patients across Europe receive timely access to new treatment -Stimulating and promoting patient-centred research and clinical trials -Developing a strong evidence base for the needs and wants of patients and their role in research -Providing information, educational and outreach programmes to member groups
Interests Represented: Does not represent commercial interests
Interests:
  • Public health
  • Research and innovation
Levels of Interest:
  • european
  • national
  • sub-national

Activities

Main EU Legislative Proposals: • Europe’s Beating Cancer Plan • Pharmaceutical Strategy for Europe • Regulation of the Parliament and European Council on Health Technology Assessment • Clinical Trials Regulation • Directive on the application of patients’ rights in cross-border healthcare
Inter-institutional or Unofficial Groupings: N/A

Head Office

Address: Avenue Louise 143/4
Post Code: 1050
City: Brussels
Country: BELGIUM
Phone: [object Object]

EU Office

Address: Avenue Louise 143/4
Post Code: 1050
City: Brussels
Country: BELGIUM
Phone: [object Object]

Financial Data

New Organisation: false
Closed Year: [object Object]
Current Year: [object Object]

Membership Information

Members10 Percent: 1
Members25 Percent: 1
Members50 Percent: 0
Members75 Percent: 0
Members: 2
Members F T E: 0.3499999940395355
Info Members: 2 members of staff involved - Co-Chief Executive Officers

Structure

Structure Type: Structure
Is Member Of: https://www.mpeurope.org/about-mpe/our-members/
Organisation Members: • Rare Cancers Europe: Rare Cancers Europe | Rare Cancers Europe - https://www.rarecancerseurope.org/ • EUROBLOODNET ePAG: European Patient Advocacy Group in Hematology | EuroBloodNet - https://eurobloodnet.eu/patientsadvocacy/epag/ • European Cancer Organisation Patient Advisory Committee (ECO PAC): Patients - European Cancer Organisation - https://www.europeancancer.org/patients • European Haematology Association (EHA) PAC • EURORDIS: EURORDIS - The Voice of Rare Disease Patients in Europe - https://www.eurordis.org/