eujobs.coEU jobs in brussels
Post a JobHeadhunter

Multiple Sclerosis Ireland

Acronym: MS Ireland

General Information

Identification Code: 519198591689-20
Website: [object Object]
Entity Form: Charity
Registration Category: Non-governmental organisations, platforms and networks and similar
Registration Date: 4/22/2024
EP Accredited Number: 0

Mission & Interests

Goals: MS Ireland provides a range of services to thousands of people with MS, and their family members. These services are delivered where practical and possibly in a blended way, through in person and online. MS Ireland strives to provide a high-quality service which supports and promotes integrated and evidenced based services. Our services are managed in a way that complies to recognised quality standards and as an organisation it is imperative that our work can be measured against good personal outcomes for people with MS. We work in partnership with the HSE and other service providers to enable people with MS to achieve the maximum quality of life through health promoting programmes. The services offered are delivered by MS Ireland’s professional staff and these focus on the following: Community Worker Service Wellness and Symptom Management Programmes Exercise and Physical Activity Programmes Information Service Advocacy and Research Respite - The MS Care Centre
Interests Represented: Promotes their own interests or the collective interests of their members
Interests:
  • Employment and social affairs
  • Public health
  • Research and innovation
Levels of Interest:
  • european
  • sub-national
  • national

Activities

Main EU Legislative Proposals: We are calling our policy decision-makers to implement changes for healthier and sustainable health and social care systems that truly support those affected by MS and other neurological conditions and further elevate the rights and well-being of people living with MS, building on the following instruments: Charter of Fundamental Rights and European Pillar of Social Rights: Ensuring the fundamental rights of older individuals and those with disabilities, emphasising dignity, independence, and active societal participation. Non-Communicable Diseases Initiative “Healthier Together”: A significant step addressing cross-sectoral needs, although not MS-specific, it addresses crucial areas like high-quality treatment, rehabilitation, and support services. EU’s Disability Rights Strategy (2021-2030): A targeted commitment aligning with human rights, equality, and social inclusion, featuring initiatives such as the Disability Employment Package and the upcoming Framework for Social Services of Excellence (expected in 2024). European Commission’s European Care Strategy: A comprehensive approach spanning health, social care, employment, disability, and equality, notably emphasizing long-term care challenges and the vital role of formal and informal carers. EU’s incentives for research and innovation: Through programs like Horizon Europe and EU4Health, the EU has shown significant progress in incentivising research and innovation in the field of rare diseases, including MS, playing a pivotal role in advancing treatment, symptom management, and fostering hope for an improved quality of life. A sustained commitment and expanded efforts are still needed to address the unmet needs of those affected by MS across Europe.
Communication Activities: As members of the European MS Platform, we utilise their toolkits while engaging with MEPs such as the One Million Minds manifesto document. All European engagement is done using their materials and publications.
Inter-institutional or Unofficial Groupings: Disability

Head Office

Address: 80 Northumberland Rd Ballsbridge Dublin
Post Code: D04 T856
City: Dublin
Country: IRELAND
Phone: [object Object]

EU Office

Address: 80 Northumberland Rd Ballsbridge Dublin
Post Code: D04 T856
City: Dublin
Country: IRELAND
Phone: [object Object]

Financial Data

New Organisation: false
Closed Year: [object Object]
Current Year: [object Object]

Membership Information

Members10 Percent: 0
Members25 Percent: 0
Members50 Percent: 0
Members75 Percent: 0
Members: 1
Members F T E: 1
Info Members: Alison Cotter, the Advocacy officer for MS Ireland will be involved in the activities under heading 9. Representing MS Ireland, Alison aims to ensure the voices of the over 9,000 people living with MS in Ireland are heard at a European level.

Structure

Structure Type: Structure
Is Member Of: MS Ireland are members of the NAI, MSIF, EMSP and AIMSRN
Organisation Members: MS Ireland are members of the NAI, MSIF, EMSP and AIMSRN