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Lymphoma Coalition

Acronym: LC

General Information

Identification Code: 809500545743-75
Website: www.lymphomacoalition.org
Entity Form: Non profit organisation
Registration Category: Non-governmental organisations, platforms and networks and similar
Registration Date: 3/8/2022
Last Update: 3/6/2024

Mission & Interests

Goals: Lymphoma Coalition, a worldwide network of patient groups with a full or partial focus on providing support to patients with lymphoma, was formed in 2002 and incorporated as a not for profit organisation in 2010. The need for a central hub of consistent as well as reliable current information was recognised as well as the need for lymphoma patient organisations to share resources, best practices, and policies and procedures. With this in mind, four lymphoma organisations started the LC. Today, there are over 90 member organisations from over 55 countries. LC’s current strategy is focused on ensuring impact within two pillars: information and advocacy. Vision: Equity in lymphoma outcomes across borders. Mission: Enabling global impact by fostering a lymphoma ecosystem that ensures local change and evidence-based action.
Interests Represented: Promotes their own interests or the collective interests of their members
Interests:
  • Communication
  • Education and training
  • Employment and social affairs
  • Humanitarian aid and civil protection
  • International co-operation and development
  • Public health
  • Research and innovation
Levels of Interest:
  • sub-national
  • global
  • european

Activities

Main EU Legislative Proposals: Bringing lymphoma and CLL into the Beating Cancer plan in a useable and actionable way. As blood cancers are not preventable, cannot be screened for, and are often treated uniquely, the current plan does not well reprepsent this group of cancers. We strive to ensure the specific needs of blood cancer patients are properly represented. In addition, LC is interested in the following (not limited to): Right to be Forgotten Clinical Trials Regulation Pharmaceutical Legislation Joint Clinical Assessments - EU HTA Stakeholder Network
Communication Activities: Provided feedback to the BECA plan throughout the consultation process Provided feedback to the Joint Clinical Assessment and EUnetHTA open consultations Provided feedback to the Pharmaceutical Legislation Members of the HTA Stakeholders Network Actively involved in the Code of Conduct access to financial services cancer patients
Inter-institutional or Unofficial Groupings: Cancer

Head Office

Address: 401-8 Stavebank Rad N
Post Code: L5G 2T4
City: Mississauga
Country: CANADA
Phone:
Indic Phone: 1
Phone Number: 9059900609

EU Office

Address: 1 avenue Claude Vellefauxcedex 10
Post Code: 75475
City: Paris
Country: FRANCE
Phone:
Indic Phone: 34
Phone Number: 663334571

Financial Data

Closed Year:
Start Date:
End Date:
Funding Sources:
    Contributions:
      Total Budget: 0
      Grants:
        Current Year:
        Grants:

          Membership Information

          Members10 Percent: 2
          Members50 Percent: 1
          Members: 3
          Members F T E: 0.699999988079071

          Structure

          Structure Type: Structure
          Is Member Of: European Hematology Association - European Affairs Committee https://ehaweb.org/organization/committees/european-affairs-committee/#:~:text=Aim,Office%20and%20other%20EHA%20Committees. European Bone and Marrow Transplant Group Patient Advocacy Committee https://www.ebmt.org/patient-advocacy-committee ESMO Patient Advocates Working Group https://www.esmo.org/about-esmo/organisational-structure/european-policy-committee/patient-advocates-working-group
          Organisation Members: European Cancer Organisation through the Patient Advisory Committee https://www.europeancancer.org/patients European Hematology Association - European Affairs Committee https://ehaweb.org/organization/committees/european-affairs-committee/#:~:text=Aim,Office%20and%20other%20EHA%20Committees. Global Cancer Coalitions Network https://www.globalccn.org/ UICC https://www.uicc.org/membership/lymphoma-coalition WECAN https://wecanadvocate.eu/#participants

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