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Irish Platform for Patient Organisations, Science & Industry

Acronym: IPPOSI

General Information

Identification Code: 826099742701-84
Website: [object Object]
Entity Form: Charity; Company Limited by Guarantee
Registration Category: Non-governmental organisations, platforms and networks and similar
Registration Date: 5/10/2021
Last Update: 9/25/2023
EP Accredited Number: 0

Mission & Interests

Goals: The goal of our organisation is to ensure that the voice of individuals with chronic and/or rare conditions is heard across the health innovation sector. We work mainly around issues related to access to innovation, health data, and public and patient involvement. We focus on national legislation, policy and practice, but where European proposals impact on national action, we aim to represent the views of our members by making submissions and attending events.
Interests Represented: Promotes their own interests or the collective interests of their members
Interests:
  • Digital economy and society
  • Public health
  • Research and innovation
Levels of Interest:
  • european
  • sub-national
  • global
  • national

Activities

Main EU Legislative Proposals: We target EU legislative proposals or policies in the public health sphere. In 2022, we responded to public consultations around: - EUnetHTA - New regulation on health Technology Assessment On each occasion, we made written submission via the EU portal.
Communication Activities: Our written submissions to EU public consultations are shared on our website and on our social media channels.
Inter-institutional or Unofficial Groupings: Disability,Artificial intelligence and digital

Head Office

Address: 77 Camden St lowerDublin
Post Code: D02XE80
City: Dublin
Country: IRELAND
Phone: [object Object]

EU Office

Address: 77 Camden St lowerDublin
Post Code: D02XE80
City: Dublin
Country: IRELAND
Phone: [object Object]

Financial Data

New Organisation: false
Closed Year: [object Object]
Current Year: [object Object]

Membership Information

Members10 Percent: 0
Members25 Percent: 1
Members50 Percent: 0
Members75 Percent: 0
Members: 1
Members F T E: 0.25

Structure

Structure Type: Structure
Is Member Of: https://www.ipposi.ie/about-us/membership/
Organisation Members: European Patients' Forum - https://www.eu-patient.eu PFMD - https://patientfocusedmedicine.org/ EUPATI - https://eupati.eu/ Data Saves Lives - https://datasaveslives.eu/