Inspire2Live
General Information
Identification Code: 272486517947-03
Website: [object Object]
Entity Form: Stichting (ANBI)
Registration Category: Non-governmental organisations, platforms and networks and similar
Registration Date: 6/23/2015
Last Update: 8/28/2023
EP Accredited Number: 0
Mission & Interests
Goals: Getting cancer under control and inspiring people to lead happy and healthy lives in harmony with cancer!
In our mission, we are the patient’s voice in cancer, because there is too little patient’s perspective present in decisions on cancer research, treatments and regulations. And they need our help now. Everywhere, and not only the ones in the future.
Inspire2Live is a patient advocacy organization. The purpose of Inspire2Live is get cancer under control. We believe that this is feasible when patients, physicians and scientists work together to share knowledge, data and inspiration together.
Interests Represented: Does not represent commercial interests
Interests:
- Competition
- Education and training
- Food safety
- Humanitarian aid and civil protection
- International co-operation and development
- Public health
- Research and innovation
- Trans-European Networks
Levels of Interest:
- global
- european
- national
Activities
Main EU Legislative Proposals: - Tobacco file
- Development, patents, market access and reimbursement of new medicines and diagnostics
- Personalised Medicine
- HORIZON and IMI project funding
- broad use of whole genome sequencing in diagnostics
Communication Activities: 1. Consultancy European Committee on outlines future HORIZON funding
Inspire2Live is taking part in consultancy rounds of the European Committee on the future of HORIZON.
Our view on Horizon and IMI2 partnerships in short:
Active PA involvement has to be part from any initial proposal onwards for an application to even be considered for funding: if about us, not without us!
Change it into an Open Source Pharma Fund to finance projects that consist of:
AI on basis of FAIR ( i.e.in which WGS-data is compared to pharmacogenetics and pharmacogenomics);
Wetlabs (do the AI-outcomes for best treatment work? Registration real life data);
Licensing (IP, FAIR access; fair pricing).
2. Whole Genome Sequencing
We want the best treatment based on Whole Genome Sequencing to become available for everyone. We support an initiative by several MP's in Dutch Parliament to achieve that goal and want to roll out our initiative European wide.
3. IVDR implementation
Inter-institutional or Unofficial Groupings: Artificial intelligence and digital,Cancer
Head Office
Address: Duwboot 20
Post Code: 3991 CD
City: Houten
Country: NETHERLANDS
Phone: [object Object]
EU Office
Address: Noorderakerweg 271B
Post Code: 1069 LT
City: Amsterdam
Country: NETHERLANDS
Phone: [object Object]
Financial Data
New Organisation: false
Closed Year: [object Object]
Current Year: [object Object]
Complementary Information: Door de ontvangst van een donatie in 2020 (gerapporteerd in dat jaar, ook verantwoord in het jaarverslag 2020) is er sprake van voldoende liquiditeit om het budget 2022 uit eigen vermogen te financieren.
Membership Information
Members10 Percent: 1
Members25 Percent: 0
Members50 Percent: 1
Members75 Percent: 0
Members: 2
Members F T E: 0.6000000238418579
Info Members: Inspire2Live werkt volledig met onbezoldigde patient advocates. Daar zij slechts hun reis- en verblijfkosten vergoed krijgen bij hun inzet, blijven de jaarlijkse kosten gemoeid met lobby lager dan men qua omvang zou verwachten.
Structure
Structure Type: Structure
Is Member Of: Onze organisatie kent geen ledenstructuur. het is een netwerkorganisatie die wereldwijd verbindingen legt tussen patiënten onderzoekers en behandelaars en farmaceuten op het terrein van de oncologische zorg.
https://inspire2live.org/about/our-partners/
Wij werken in een aantal projecten samen met IQVIA (www.IQVIA.com)
Wij hebben een lopende samenwerking Amsterdam Universitair Medisch Centrum (amsterdamumc.org)
Wij zijn eigenaar van het bedrijf Saninfo (nog geen activiteiten en geen website)
Organisation Members: https://inspire2live.org/about-us/the-patients-voice/partners/