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GBS|CIDP Foundation International

General Information

Identification Code: 444214892085-61
Website: www.gbs-cidp.org
Entity Form: Non Profit
Registration Category: Non-governmental organisations, platforms and networks and similar
Registration Date: 5/2/2024

Mission & Interests

Goals: We improve the quality of life for individuals and families affected by GBS, CIDP, MMN, and related conditions. Our unwavering commitment to the patients we serve is built on four pillars: support, education, research, and advocacy. We support patients by nurturing a global network of volunteers, healthcare professionals, researchers and industry partners to provide them with critical, timely, and accurate information; We educate doctors, clinicians, patients and caregivers to increase awareness and understanding; We fund research through grants, establishing fellowships and other appropriate avenues to identify the causes of and discover treatments; We advocate at the federal, state, and grassroots levels to educate policymakers and help them make informed decisions that benefit our patient community.
Interests Represented: Does not represent commercial interests
Interests:
  • Communication
  • Public health
Levels of Interest:
  • global

Activities

Main EU Legislative Proposals: EU SoHo Regulation Critical Medicines Alliance - Advocating for legislation that pertains to relevant therapies, adaptive devices, resources, research, and the collection and distribution of treatments for the conditions of Guillain-Barre Syndrome, Chronic Inflammatory Demyelinating Polyneuropathy, or Multi-focal Motor Neuropathy, including bio-plasma treatments, but not exclusive to.
Communication Activities: Communications activities to include letter writing campaigns, Rare Disease Day activities, Plasma Awareness, Awareness to Healthcare Professional in the form of public relations campaigns and awareness raising events.
Inter-institutional or Unofficial Groupings: Disability

Head Office

Address: 375 East Elm StreetSuite 101
Post Code: 19428
City: Conshohocken
Country: UNITED STATES
Phone:
Indic Phone: 1
Phone Number: 8662243301

EU Office

Address: Via Pietro Metastasio n. 7/b
Post Code: 90011
City: Bagheria
Country: ITALY
Phone:
Indic Phone: 39
Phone Number: 3387476238

Financial Data

Closed Year:
Start Date:
End Date:
Funding Sources:
  • Donations
  • Grants
  • Public funding
  • Other
Other Source Info: The GBS|CIDP Foundation International is a non profit organisation, with the main sources of funding being public funding, donations and pharamaceutical industry sponsorships.
Contributions:
  • Amount: 0
    Currency: €
    _id:
    Buffer:
    0: 104
    1: 64
    2: 61
    3: 191
    4: 158
    5: 212
    6: 182
    7: 32
    8: 86
    9: 90
    10: 96
    11: 245
  • Amount: 0
    Currency: €
    _id:
    Buffer:
    0: 104
    1: 64
    2: 61
    3: 191
    4: 158
    5: 212
    6: 182
    7: 32
    8: 86
    9: 90
    10: 96
    11: 246
  • Amount: 0
    Currency: €
    _id:
    Buffer:
    0: 104
    1: 64
    2: 61
    3: 191
    4: 158
    5: 212
    6: 182
    7: 32
    8: 86
    9: 90
    10: 96
    11: 247
Total Budget: 3700000
Grants:
    Current Year:
    Grants:

      Membership Information

      Members10 Percent: 1
      Members25 Percent: 1
      Members75 Percent: 1
      Members: 3
      Members F T E: 1.100000023841858
      Info Members: 3 Employees

      Structure

      Structure Type: Structure
      Is Member Of: GAIN of UK: Guillain-Barré Autoimmune conditions and Inflammatory Neuropathies https://gaincharity.org.uk/
      Organisation Members: EURORDIS Rare Disease Day PPTA Plasma Protein Therapeutics Association IPOPI International Primary Immunodeficiencies Organization PLUS Platform of Plasma Protein Users

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