European Society for Paediatric Oncology

Acronym: SIOP Europe / SIOPE

General Information

Identification Code: 122803916413-09

Website: http://www.siope.eu

Entity Form: Non-profit association (asbl)

Registration Category: Non-governmental organisations, platforms and networks and similar

Registration Date: 3/13/2015

Last Update: 10/28/2023

EP Accredited Number: 5

Mission & Interests

Goals: The European Society for Paediatric Oncology (SIOP Europe, or SIOPE) is the single united European organization representing healthcare and research professionals in the field of childhood cancers, with over 2,500 members in 35 countries. The goal is to ensure the best possible care and outcomes for all children and young people with cancer in Europe. The objectives are to increase cure rates, enhance survivors’ quality of life, and tackle inequalities. Remit: - Research: e.g., serves as the common European platform for paediatric haemato-oncology clinical trials - Care: e.g., coordinates the development of European standards of care & fosters equal access - Education & Training: e.g., hub for learning & exchange on state-of-the-art science, clinical practice, and public policy - Advocacy: e.g., engages with the EU to foster an enabling policy environment for childhood cancer control SIOPE is also involved in the global health agenda via SIOP (international).

Interests Represented: Does not represent commercial interests

Interests:

Education and training
Employment and social affairs
International co-operation and development
Justice and fundamental rights
Public health
Research and innovation
Youth

Levels of Interest:

european

Activities

Main EU Legislative Proposals: SIOPE focuses on policies and programmes addressing healthcare organization & delivery and health research, in particular in the areas of cancer and rare diseases. Main EU initiatives followed as of November 2023 - Europe’s Beating Cancer Plan - EU Cancer Mission - Pharmaceutical Strategy for Europe - European Reference Networks - Horizon Europe - EU4Health Main EU legislative files followed as of November 2023 - Regulation and Directive on Medicinal products for human use - Regulation on medicinal products for paediatric use - Regulation on orphan medicinal products - Regulation on advanced therapy medicinal products - Regulation on health technology assessment - European Health Data Space Regulation - General Data Protection Regulation - Directive on patients’ rights in cross-border healthcare - Regulation on substances of human origin - Clinical trials Regulation SIOPE also follows EU initiatives in other relevant areas such as Employment, Social Affairs and Inclusion [e.g., European Pillar of Social Rights], International Partnerships [e.g., EU Global Health Strategy], Justice and Fundamental rights [e.g., EU Strategy on the Rights of the Child].

Communication Activities: PUBLICATIONS Paediatric cancer on the European agenda - The SIOPE Strategic Plan: A European Cancer Plan for Children and Adolescents with Cancer: https://siope.eu/european-strategic-plan/ - The SIOPE Strategic Plan Update 2021-2026: https://siope.eu/european-strategic-plan/ - Vassal G et al. The SIOPE Strategic Plan: A European Cancer Plan for Children and Adolescents. Journal of Cancer Policy 2016. https://doi.org/10.1016/j.jcpo.2016.03.007 - Vassal G et al. Challenges for children and adolescents with cancer in Europe: the SIOP-Europe agenda. Pediatr Blood Cancer 2014. https://doi.org/10.1002/pbc.25044 Cancer Mission - Kearns PR et al. European paediatric cancer mission: aspiration or reality? Lancet Oncol 2019. https://doi.org/10.1016/S1470-2045(19)30487-5 Access to medicines - Vassal G et al. Access to essential anticancer medicines for children and adolescents in Europe. Ann Oncol 2020. https://doi.org/10.1016/j.annonc.2020.12.015 - Otth M et al. Essential medicines for childhood cancer in Europe: a pan-European, systematic analysis by SIOPE. Lancet Oncol 2022. https://doi.org/10.1016/S1470-2045(22)00623-4 - Schoot RA et al. Market access to new anticancer medicines for children and adolescents with cancer in Europe. European Journal of Cancer 2022. https://doi.org/10.1016/j.ejca.2022.01.034 - Vassal G et al. Impact of the EU Paediatric Medicine Regulation on new anti-cancer medicines for the treatment of children and adolescents. Lancet Child Adolesc Health 2023. https://doi.org/10.1016/S2352-4642(22)00344-3 Health data/GDPR - Vassal G et al. The impact of the EU General Data Protection Regulation on childhood cancer research in Europe. Lancet Oncol 2022. https://doi.org/10.1016/S1470-2045(22)00287-X Care organization and delivery - Kowalczyk JR et al. Towards reducing inequalities: European Standards of Care for Children with Cancer. Eur J Cancer 2014. https://doi.org/10.1016/j.ejca.2013.11.004 - Janssens GO et al. Recommendations for the organisation of care in paediatric radiation oncology across Europe: a SIOPE-ESTRO-PROS-CCI-Europe collaborative project in the framework of the JARC. Eur J Cancer. 2019. https://doi.org/10.1016/j.ejca.2019.03.003 Rare cancers - Joint Action on Rare Cancers (JARC), Rare Cancer Agenda 2030: ten recommendations from the EU joint action on rare cancers. Lecce: Youcanprint. 2019: 131 : https://siope.eu/media/documents/rare-cancer-agenda-2030.pdf [SIOPE was a co-author. See in particular sections on childhood cancer]. CAMPAIGNS - European Elections: Manifesto of the paediatric oncology and haematology community [latest: https://siope.eu/manifesto2019/] - Gold September - Childhood Cancer Awareness Month: Presence at the European Parliament (EP), policy events - International Childhood Cancer Day (ICCD): Annual policy event at the EP EVENTS [SELECTED HIGHLIGHTS] - SIOPE ICCD annual event hosted by MEPs [topic 2023: Childhood cancer survivorship, 2022: GDPR in childhood cancer research,..] - SIOPE & MEPs Against Cancer (MAC) events [topic 2022-23: EU Pharmaceutical Legislation, 2021: Europe’s Beating Cancer Plan & Cancer Mission, …] - EP ENVI & BECA committee hearings: specialist contributions - European Commission workshops on Europe's Beating Cancer Plan & Cancer Mission: dissemination to members & broader community & specialist contributions - SIOPE Annual Meeting [https://siopeurope.eu/]

Inter-institutional or Unofficial Groupings: N/A

Head Office

Address: Clos Chapelle-aux-Champs 30c/O BLSI

Post Code: 1200

City: Brussels

Country: BELGIUM

Phone:

Indic Phone: 32

Phone Number: 2 880 62 82

EU Office

Address: Clos Chapelle-aux-Champs 30c/O BLSI

Post Code: 1200

City: Brussels

Country: BELGIUM

Phone:

Indic Phone: 32

Phone Number: 2 880 62 82

Financial Data

Closed Year:

Start Date:

End Date:

Funding Sources:

Donations
EU funding
Grants
Member's contributions

Contributions:

Amount: 0
Currency: €
_id:
Buffer:
0: 104
1: 64
2: 61
3: 95
4: 158
5: 212
6: 182
7: 32
8: 86
9: 90
10: 58
11: 255
Amount: 0
Currency: €
_id:
Buffer:
0: 104
1: 64
2: 61
3: 95
4: 158
5: 212
6: 182
7: 32
8: 86
9: 90
10: 59
11: 0
Amount: 0
Currency: €
_id:
Buffer:
0: 104
1: 64
2: 61
3: 95
4: 158
5: 212
6: 182
7: 32
8: 86
9: 90
10: 59
11: 1
Amount: 0
Currency: €
_id:
Buffer:
0: 104
1: 64
2: 61
3: 95
4: 158
5: 212
6: 182
7: 32
8: 86
9: 90
10: 59
11: 2

Total Budget: 315151

Grants:

Source: ERN-PAEDCAN (847032) Coordinator - Paediatric Rare Tumours Network - European Registry (EU 3HP)
Amount: 0
Currency: €
_id:
Buffer:
0: 104
1: 64
2: 61
3: 95
4: 158
5: 212
6: 182
7: 32
8: 86
9: 90
10: 58
11: 250
Source: PRIMAGE project (826494) (PRedictive In-silico Multiscale Analytics to support cancer personalized diaGnosis and prognosis, Empowered by imaging biomarkers)
Amount: 0
Currency: €
_id:
Buffer:
0: 104
1: 64
2: 61
3: 95
4: 158
5: 212
6: 182
7: 32
8: 86
9: 90
10: 58
11: 251
Source: PanCare Follow Up Project (824982) (Novel, patient-centered survivorship care to improve care quality, effectiveness, cost-effectiveness and accessibility for survivors and caregivers) (H2020
Amount: 0
Currency: €
_id:
Buffer:
0: 104
1: 64
2: 61
3: 95
4: 158
5: 212
6: 182
7: 32
8: 86
9: 90
10: 58
11: 252
Source: PARTNER (777336) Participant - ERN-PAEDCAN Partner: Paediatric Rare Tumours Network - European Registry (EU 3HP)
Amount: 0
Currency: €
_id:
Buffer:
0: 104
1: 64
2: 61
3: 95
4: 158
5: 212
6: 182
7: 32
8: 86
9: 90
10: 58
11: 253
Source: IMI C4C Project (777389) (Collaborative network for European Clinical Trials for Children) (H2020)
Amount: 0
Currency: €
_id:
Buffer:
0: 104
1: 64
2: 61
3: 95
4: 158
5: 212
6: 182
7: 32
8: 86
9: 90
10: 58
11: 254

Current Year:

Grants:

Complementary Information: 2022 budget info will be updated shortly

Membership Information

Members: 9

Members F T E: 9

Info Members: Latest information to be updated

Structure

Structure Type: Structure

Is Member Of: The SIOPE membership is based on the European National Paediatric Haemato-Oncology Societies or groups (‘NaPHOS’), which encourage their members to become part of the SIOPE network. In countries without NaPHOS, medical institutions and treatment centres specialised in paediatric cancer care can join SIOPE. Such centres can allow the paediatric haemato-oncology professionals in their institute to also become members of SIOPE. To ensure an open and continuously growing community, oncology professionals who are not members of a NaPHOS can also join SIOPE. List of members: http://www.siope.eu/about-siope/members/

Organisation Members: https://siope.eu/activities/partnerships/