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European Society for Immunodeficiencies

Acronym: ESID

General Information

Identification Code: 482178845531-68
Website: [object Object]
Entity Form: non for profit association
Registration Category: Non-governmental organisations, platforms and networks and similar
Registration Date: 2/15/2022
Last Update: 3/4/2024
EP Accredited Number: 0

Mission & Interests

Goals: The European Society for immunodeficiencies (ESID) is a non for profit association that was created in 1994. ESID has been striving to improve the knowledge in the field of Primary Immunodeficiency (PID) by encouraging research, developing educational programs and fostering cooperation among all those involved in the diagnosis, treatment and management of these diseases.
Interests Represented: Does not represent commercial interests
Interests:
  • Culture
  • Education and training
  • Food safety
  • International co-operation and development
  • Justice and fundamental rights
  • Public health
  • Regional policy
Levels of Interest:
  • global
  • sub-national
  • european
  • national

Activities

Main EU Legislative Proposals: Any health initiatives relating to immunodeficiencies, neonatal screening, COVID19, GDPR.
Communication Activities: Neonatal screening day - promotion of preamptive discovery of immunodeficiencies within newborns Research done into the affect of COVID 19 on patients with immunodeficiencies Educational initiatives throughout developing countries to raise awareness and methods to deal with immunodeficiencies Global educational initiatives to promote Junior doctors and researchers, in developing and non developing countries. Publication of guidelines to support doctors
Inter-institutional or Unofficial Groupings: N/A

Head Office

Address: Mijnbouwstraat 232628 RV Delft
Post Code: 2628
City: Delft
Country: NETHERLANDS
Phone: [object Object]

EU Office

Address: Mijnbouwstraat 232628 RV Delft
Post Code: 2628
City: Delft
Country: NETHERLANDS
Phone: [object Object]

Financial Data

New Organisation: false
Closed Year: [object Object]
Current Year: [object Object]
Complementary Information: ESID supports itself from membership payments and grants for research.

Membership Information

Members10 Percent: 0
Members25 Percent: 0
Members50 Percent: 9
Members75 Percent: 2
Members: 12
Members F T E: 7
Info Members: The board is all on voluntary non paid basis, and comprises of 11 doctors supported by an executive director.

Structure

Structure Type: Structure
Is Member Of: Asia-Pacific Society of Immunodeficiences (APSID) African Society for Immunodeficiencies (ASID) Clinical Immunology Society (CIS) Latin American Society for Immunodeficiencies (LASID) IPOPI - non-profit international organisation that represents primary immunodeficiency patients. INGID - The International Nursing Group for Immunodeficiencies
Organisation Members: IAPIDS alliance - The International Alliance for Primary Immunodeficiency Societies ERN-RITA - leading European centres with expertise in diagnosis and treatment of rare immunological disorders. EBMT -The European Society for Blood and Marrow Transplantation (EBMT)