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European Patients' Forum (EPF)

Acronym: EPF

General Information

Identification Code: 61911227368-75
Website: [object Object]
Entity Form: ASBL
Registration Category: Non-governmental organisations, platforms and networks and similar
Registration Date: 12/7/2011
Last Update: 3/18/2024
EP Accredited Number: 5

Mission & Interests

Goals: The European Patients’ Forum is a not-for-profit, independent umbrella organisation of patients’ organisations active in the field of European public health and health advocacy. EPF’s vision is a Europe where patient organisations are valued partners in creating equitable, person-centered, accessible, and sustainable healthcare systems, based on patients’ unique expertise. Our mission is to advance the interests of patients and patients’ communities by strengthening their collective impact across Europe through effective advocacy, education, empowerment, and partnership. As per our new Strategic Plan (https://www.eu-patient.eu/about-epf/about-us/), our strategic goals are 1:Shaping A New European Agenda For Patients; 2:Meaningful Patient Involvement In Co-Creating Better Health Policy, Practice, Research And Education; 3:Digital Transformation That Delivers For Patients; 4:Accessing The Healthcare We Need With No Discrimination; 5:Strengthening Patient Communities Across Europe
Interests Represented: Does not represent commercial interests
Interests:
  • Business and industry
  • Consumers
  • Digital economy and society
  • Employment and social affairs
  • Justice and fundamental rights
  • Public health
  • Regional policy
  • Research and innovation
  • Single market
  • Youth
Levels of Interest:
  • european

Activities

Main EU Legislative Proposals: The European Patients’ Forum (EPF) leads patient advocacy in Europe providing a cross-disease perspective from a wide patient community to the policy-making process on issues which have a direct impact on patients’ lives. Our 2024 Work Plan focuses on Patient Involvement throughout our activities, including as part of our work on patient safety, patient equity, data & digital health and community. The activities under these four themes encompass the work of four mutually reinforcing areas; policy & advocacy, capacity building, projects and communications. A full overview of the year’s work plan can be found here: http://www.eu-patient.eu/library/Other-Material/ As per our Strategic plan, our policy activity will focus on 1: Shaping A New European Agenda For Patients; 2: Meaningful Patient Involvement In Co-Creating Better Health Policy, Practice, Research And Education; 3: Digital Transformation That Delivers For Patients; 4: Accessing The Healthcare We Need With No Discrimination; 5: Strengthening Patient Communities Across Europe In terms of policy priorities for 2024, EPF will focus on: our campaign for the 2024 European Parliament elections focused on meaningful involvement of patient organisations in health policy; digital health (e.g. European Health Data Space, artificial intelligence); the ongoing revision of EU pharmaceutical legislation, including regulatory processes and unmet medical needs; antimicrobial resistance; implementation of EU legislation on medical devices (MDR/IVDR); the EU4Health programme and patient involvement in EU health-related research projects. EPF will also contribute a patient perspective to other policy initiatives where relevant, focusing on patient empowerment, reducing health inequalities, quality of care and patient safety, patient information and health literacy, and patient involvement in health technology assessment.
Communication Activities: Our recent relevant position papers include (published in 2023): •EPF's reaction to the European Parliament’s adoption of the European Health Data Space report; December 2023. •EPF’s Statement for the European Antibiotic Awareness Day. November 2023. •EPF response to the European Commission’s call for feedback on the revision of the EU Pharmaceutical Legislation. November 2023. •EPF’s position on establishing an opt-out system for the secondary use of health data. October 2023. •EPF's paper on AI in Healthcare: Advancing Patient-Centric Care through Co-design and Responsible Implementation. October 2023. •EPF's call on a patient-centred vision for Unmet medical needs. October 2023. •EPF's reaction to the draft reports on the revision of EU pharmaceutical legislation. October 2023. •EPF's call on ensuring access to paediatric medicines. October 2023. •EPF's recommendations for a patient-centred revision of the EU pharmaceutical legislation. July 2023. •EPF position statement EU4Health priorities. June 2023. •EPF's statement on stepping up the involvement of the patient community in the fight against AMR. May 2023. •EPF's reaction to pharmaceutical legislation revision. April 2023. •EPF's reaction to the proposed amendments of the Medical Devices Regulation. January 2023. All our positions, statements and briefings are published on our website at: http://www.eu-patient.eu/library/position-papers--briefings/ Recent events: •11/12/2023 – EPF simulation workshop on the EU HTA Regulation •13-16/07/2023 – Summer Training Course for Young Patient Advocates (STYPA) •31/05/2023 – EPF member-only webinar on the revision of EU Pharmaceutical Legislation •28/04/2023 – EPF's 20th Anniversary event •29/04/2023 – EPF's Annual General Meeting A list of past events can be found here: https://www.eu-patient.eu/Events/Archived-Events/ Furthermore, information on our several EU projects can be found here: https://www.eu-patient.eu/Projects/ongoing-projects/
EU Supported Forums and Platforms: 03 - Clinical Investigation and Evaluation (CIE)#X03565/5#https://ec.europa.eu/transparency/expert-groups-register/screen/expert-groups/consult?lang=en&groupID=100600 #OBSERVER #C#Civil societyeHealth Stakeholder Group#E02769#https://ec.europa.eu/transparency/expert-groups-register/screen/expert-groups/consult?lang=en&groupID=2769 #MEMBER #C#Civil society#OtherMedical Device Coordination Group#X03565#https://ec.europa.eu/transparency/expert-groups-register/screen/expert-groups/consult?lang=en&groupID=3565 #OBSERVER #C#Civil societyAntimicrobial Resistance One Health Network#E03853#https://ec.europa.eu/transparency/expert-groups-register/screen/expert-groups/consult?lang=en&groupID=3853 #MEMBER #C#Civil society04 - Post-Market Surveillance and Vigilance (PMSV)#X03565/6#https://ec.europa.eu/transparency/expert-groups-register/screen/expert-groups/consult?lang=en&groupID=100601 #OBSERVER #C#Civil society
Inter-institutional or Unofficial Groupings: N/A

Head Office

Address: Chaussée d'Etterbeek 180
Post Code: 1040
City: Brussels
Country: BELGIUM
Phone: [object Object]

EU Office

Address: Chaussée d'Etterbeek 180
Post Code: 1040
City: Brussels
Country: BELGIUM
Phone: [object Object]

Financial Data

New Organisation: false
Closed Year: [object Object]
Current Year: [object Object]
Complementary Information: Our financial information is published yearly in our annual report, and on EPF website in this section: http://www.eu-patient.eu/About-EPF/Transparency/Balance-Sheet-Accounts/

Membership Information

Members10 Percent: 0
Members25 Percent: 0
Members50 Percent: 0
Members75 Percent: 0
Members: 6
Members F T E: 6
Info Members: EPF Board members are involved in our work on a voluntary, non-remunerated basis

Structure

Structure Type: Structure
Is Member Of: The full list of our members is also available at this link: https://www.eu-patient.eu/globalassets/membership/list-of-epf-members-2.pdf EPF membership consists of 79 members: 60 Full members, 18 Associate members, and 1 provisional member. Out of 79 members, 53 pan-European umbrellas and 26 organisations are active at national levels, representing 21 countries.
Organisation Members: •EPF co-leads the EU4Health Civil Society Alliance in collaboration with EPHA (ww.eu4health.eu) •EPF participates in the AMR Stakeholder Network, an informal network of EU health organisations interested in the topic of AMR. It has more than 60 organisations. It is coordinated by EPHA. More information is available here https://epha.org/amr-stakeholder-network •EPF is a member of Civil Society Europe and SDG Watch Europe. •EPF participates in All Policies for Healthy Europe (AP4HE), an informal stakeholders’ group focusing on citizens’ health and well-being. It is currently managed by the consultancy Political Intelligence. More information is available here: https://healthyeurope.eu/ •EPF participates in the EU Health Coalition, an information stakeholders’ group funded by EFPIA and focusing on key healthcare topics. More information is available here: https://www.euhealthcoalition.eu/ •EPF is a member of the AMR patient Group, managed by Health First Europe. More information is available here: https://amrpatientgroup.eu/ •EPF is a member of the AMR Multistakeholder Partnership Platform. More information is available here: https://www.fao.org/3/cc3001en/cc3001en.pdf •EPF is a member of the EU-JAMRAI 2 Stakeholder Forum. More information is available here: https://ec.europa.eu/info/funding-tenders/opportunities/portal/screen/opportunities/projects-details/43332642/101127787/undefined?programmePeriod=2021-2027&freeKeywords=jamrai&order=DESC&page=1&pageSize=10 •EPF also develops collaborations with various organisations representing different health stakeholders and within various formal and informal networks: We have memoranda of understanding with various organisations, such as IAPO (International Alliance of Patients Organizations), ESQH (the European Society for Quality in Healthcare) CPME (the Standing Committee of European Doctors) and ENHA (The European Nutrition for Health Alliance). We also have informal relationships with other healthcare professionals’ organisations (e.g. Pharmaceutical Group of the European Union (PGEU), European Specialist Nurses Organisations (ESNO), the European Federation of Nurses (EFN), BioMed Alliance, public health organisations (e.g. the European Public Health Alliance (EPHA), the European Centre for Disease Prevention and Control (ECDC), and other including Civil Society Europe and European association working for carers (EUROCARERS). We also participate in the EFPIA Patient Think Tank, a quarterly meeting with the Pharmaceutical industry, which promotes dialogue on EU policy issues in the area of health and innovative medical research. This event is subject to the EFPIA code of conduct. EPF also works together with international organisations like the Organisation for Economic Co-operation and Development (OECD) and the World Health Organization Regional Office for Europe (WHO) Information on our cooperation with other bodies and organisations is available here: https://www.eu-patient.eu/about-epf/about-us/Cooperation/