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European Foundation for the Care of Newborn Infants

Acronym: EFCNI

General Information

Identification Code: 33597655264-22
Website: [object Object]
Entity Form: öffentliche Stiftung des bürgerlichen Rechts gemäss §§ 80,81 des Bürgerlichen Gesetzbuches
Registration Category: Non-governmental organisations, platforms and networks and similar
Registration Date: 2/8/2011
Last Update: 6/6/2024
EP Accredited Number: 0

Mission & Interests

Goals: The European Foundation for the Care of Newborn Infants (EFCNI) is the first pan-European organisation and interactive network to represent the interests of preterm and newborn infants and their families. The foundation combines the strengths of scientists, healthcare professionals, patients, experts and key stakeholders in order to improve maternal, newborn and child health to ensure the best start in life for every newborn. With our work we are calling attention to the growing challenge of preterm birth and its significant impact on the children, families and our society. We want to reduce the enormous health and social inequalities linked to newborn health. To address these disparities and to increase the standard of newborn care, we initiated the European Standards of Care for Newborn Health. You can find more information about EFCNI in our brochure "For the best start in life": www.efcni.org/wp-content/uploads/2020/06/2020_06_16_EFCNI_CorporateBrochure_EN_web.pdf
Interests Represented: Does not represent commercial interests
Interests:
  • Consumers
  • Employment and social affairs
  • Food safety
  • Humanitarian aid and civil protection
  • Public health
  • Research and innovation
  • Youth
Levels of Interest:
  • national
  • sub-national
  • global
  • european

Activities

Main EU Legislative Proposals: The importance of human milk as a means of ensuring growth and disease prevention for newborn infants, particularly those born preterm (before 37 weeks of pregnancy), sick or with low birthweight is scientifically proven. The World Health Organisation (WHO) recommends that mothers worldwide exclusively breastfeed infants for the first six months of life to achieve optimal growth, development and health. It is hence widely recognised that mother’s own milk is the preferred option for infant nutrition – yet especially for mothers giving birth to preterm, sick or low birthweight infants, this may be problematic. There are cases where the biological mother is unable to provide enough milk or is not allowed to breastfeed, e.g. due to medical conditions or treatment. When mother’s own milk is not available, international organisations and medical societies alike recommend donor human milk as the best alternative, especially for preterm, sick and low birthweight infants. The next, and last option, is a specifically designed infant formula. Donated human milk is expressed voluntarily by breastfeeding women who are not biologically related to the receiving infant and given to a human milk bank. Human milk banks are established institutions that collect, screen, store, process, and distribute this donor milk. In Europe, roughly 250 human milk banks are currently operating in more than 20 countries. The existence of human milk banks decreases the use of formulas during the first weeks of life. However, it does not lead to a decrease in breastfeeding rates, but act as a bridge to breastfeeding, rather than a substitute. Today, human milk banks are not regulated at the level of the EU. A common regulatory framework, however, would ensure that donor human milk’s procurement, storage, processing, and distribution meet high quality and safety standards in a harmonised manner. This would ensure a minimum standard and equitable access to safe donor human milk for preterm, sick and low birthweight infants and would contribute towards better health outcomes of this highly vulnerable group of patients.
Communication Activities: Today, human milk banks are not regulated at the level of the EU. A common regulatory framework, however, would ensure that donor human milk’s procurement, storage, processing, and distribution meet high quality and safety standards in a harmonised manner. This would ensure a minimum standard and equitable access to safe donor human milk for preterm, sick and low birthweight infants and would contribute towards better health outcomes of this highly vulnerable group of patients. European Expert roundtable on the establishment of human milkbanks - Publications: Making human milk matter: the need for EU regulation. The Lancet Child and Adolescent Health 2021; 5(3):161-163. Kostenzer J et al. https://doi.org/10.1016/S2352-4642(21)00021-3 https://www.efcni.org/wp-content/uploads/2021/01/2021_01_21_EFCNI_MakingHumanMilkMatter_PolicyRecommendations_final-small.pdf https://www.efcni.org/wp-content/uploads/2018/05/2018_05_08_EFCNI_Milkbank_Toolkit_web.pdf https://www.efcni.org/wp-content/uploads/2018/05/2018_05_08_EFCNI_Positionpaper_web.pdf
Inter-institutional or Unofficial Groupings: Unofficial groupings

Head Office

Address: Hofmannstrasse, 7a
Post Code: 81379
City: München
Country: GERMANY
Phone: [object Object]

EU Office

Address: Hofmannstrasse, 7a
Post Code: 81379
City: München
Country: GERMANY
Phone: [object Object]

Financial Data

New Organisation: false
Closed Year: [object Object]
Current Year: [object Object]
Complementary Information: With all our corporate partners, we enter into a formal agreement confirming our full independency and compliance with law, anti corruption and anti bribery.

Membership Information

Members10 Percent: 1
Members25 Percent: 0
Members50 Percent: 0
Members75 Percent: 0
Members: 1
Members F T E: 0.10000000149011612

Structure

Structure Type: Structure
Is Member Of: EFCNI has no direct members, but partners with the different stakeholders active in the topic of maternal and newborn health, such as parent and patient organisations, healthcare societies and institutions. A description of our networks and partners can be found on our website https://www.efcni.org/network/
Organisation Members: EFCNI is member of: Every Newborn Action Plan, a global action plan taking against preterm birth / https://www.everynewborn.org/ PMNCH (Partnership for maternal and newborn child health)/ http://www.who.int/pmnch/en/ HNN (Healthy Newborn Network)/ http://www.healthynewbornnetwork.org/ Alliance for Childhood/ http://www.allianceforchildhood.org/ NIDCAP / https://nidcap.org/ SEND / https://www.send-ev.de/