eujobs.coEU jobs in brussels
Post a JobHeadhunter

European Federation of Neurological Associations

Acronym: EFNA

General Information

Identification Code: 321826714452-53
Website: [object Object]
Entity Form: ASBL
Registration Category: Non-governmental organisations, platforms and networks and similar
Registration Date: 10/7/2014
Last Update: 6/24/2024
EP Accredited Number: 3

Mission & Interests

Goals: The European Federation of Neurological Associations [EFNA] is an umbrella group representing pan-European neurology patient groups. Our slogan ‘Empowering Patient Neurology Groups’ encapsulates our goals as an Association. We strive to add capacity to our members – allowing them to be the most effective advocates possible in their own disease specific areas. EFNA embraces the concept of Partnership for Progress – working at a high level with relevant stakeholders from the fields of policy, medical, scientific/research, industry, patient partners and other key opinion leaders.
Interests Represented: Does not represent commercial interests
Interests:
  • Employment and social affairs
  • Public health
  • Research and innovation
Levels of Interest:
  • european

Activities

Main EU Legislative Proposals: EFNA coordinates an MEP Interest Group on Brain Health and Neurological Conditions and so we follow closely EU initiatives, policies and legislative files in the healthcare and research arenas which may impact on those affected by neurological disorders. EFNA also co-founded the Global OneNeurology Initiative which is working with WHO to develop a 10 year intersectoral global action plan on epilepsy and other neurological disorders, which we hope will influence the EU Institutions to similarly prioritize neurology. EFNA accredited with Non- State Actor Status with WHO- Europe
Communication Activities: EFNA also runs training initiatives for neurology advocates. In 2023-2024, this will include a focus on implementation of the 10-year intersectoral global action plan on epilepsy and other neurological conditions. This includes access to diagnosis, treatment and care, the establishment of neurological health plans, awarenss campaigns, promotion of brain health and prevention of neurological conditions. This is supported by patient involvement in specific consultations around associated policies such as revisions to the pharma legislation and HTA processes.
Inter-institutional or Unofficial Groupings: Unofficial groupings

Head Office

Address: Rue d'Egmont, 11
Post Code: 1000
City: Brussels
Country: BELGIUM
Phone: [object Object]

EU Office

Address: EFNA11 Rue d'Egmont
Post Code: 1000
City: Brussels
Country: IRELAND
Phone: [object Object]

Financial Data

New Organisation: false
Closed Year: [object Object]
Current Year: [object Object]

Membership Information

Members10 Percent: 1
Members25 Percent: 0
Members50 Percent: 2
Members75 Percent: 1
Members: 5
Members F T E: 2.8499999046325684

Structure

Structure Type: Structure
Is Member Of: Euro-Ataxia(0), Dystonia Europe(0), EPODIN(0), European Alliance of Neuromuscular Disorders Association(0), European Alliance for Restless Legs Syndrome(0), European Headache Alliance(0), European Multiple Sclerosis Platform(0), European Polio Union(0), European Sexual Health Alliance(0), EUMGA(0), European Huntington's Disease Association(0), IBE(0), International Brain Tumour Alliance(0), Pain Alliance Europe(0), Retina International(0), Stroke Alliance for Europe(0), ADHD Europe, European Parkinson's Disease Association European ME Alliance Neurological Alliance Ireland Neurological Alliance England
Organisation Members: European Brain Council European Patients Forum Non-Communicable Disease Alliance WHO-Europe European Academy of Neurologists TRANSFORM Alliance