Drugs for Neglected Diseases initiative
Acronym: DNDi
General Information
Identification Code: 66666589895-96
Website: [object Object]
Entity Form: not-for-profit foundation
Registration Category: Non-governmental organisations, platforms and networks and similar
Registration Date: 10/18/2012
Last Update: 9/25/2023
EP Accredited Number: 0
Mission & Interests
Goals: Founded in 2003 to address the needs of patients with the most neglected diseases, DNDi is a collaborative, patients’ needs-driven, not-for-profit drug R&D organization.
The vision of the organization is to improve the quality of life and the health of people suffering from neglected diseases by using an alternative model to develop drugs for these diseases and by ensuring equitable access to new and field-relevant health tools.
In this not-for-profit model, driven by the public sector, a variety of players collaborate to raise awareness of the need to research and develop drugs for those neglected diseases that fall outside the scope of market-driven R&D. They also build public responsibility and leadership in addressing the needs of these patients.
Interests Represented: Does not represent commercial interests
Interests:
- International co-operation and development
- Public health
- Research and innovation
Levels of Interest:
- global
Activities
Main EU Legislative Proposals: Advocacy of global policy related to neglected diseases; political leadership, sustainable financing, and sound public policies for R&D in neglected diseases; treatment development for neglected diseases; strengthening of research capacities in low- and middle-income countries.
Following and contributing to policies involved in shaping EDCTP2 and EDCTP3, Horizon H2020, Innovative Medicines Initiative (IMI2) and Product Development Partnership (PDP) forum and EU research funding policies.
Focus on EU commission and other key institutions to gather political support to develop a sustainable global framework for innovations of public health importance
Communication Activities: Participation at EU conferences, Research and Innovation forums, EDCTP forums. Communications activities in close collaboration with EDCTP projects running at DNDi and their partners.
Inter-institutional or Unofficial Groupings: N/A
Head Office
Address: Chemin Camille-Vidart, 15
Post Code: 1202
City: Geneva
Country: SWITZERLAND
Phone: [object Object]
EU Office
Address: Chemin Camille-Vidart, 15
Post Code: 1202
City: Geneva
Country: SWITZERLAND
Phone: [object Object]
Financial Data
New Organisation: false
Closed Year: [object Object]
Current Year: [object Object]
Membership Information
Members10 Percent: 6
Members25 Percent: 0
Members50 Percent: 0
Members75 Percent: 0
Members: 6
Members F T E: 0.6000000238418579
Info Members: 3 DNDi staff members working in relation to EU policy. They are in the External Relations team (2) and in the Policy and Advocacy team (1). In total it amounts to 3 people dedicating 20% of their time to matters related to the EU.
Structure
Structure Type: Structure
Is Member Of: http://www.dndi.org/about-dndi/dndi-worldwide/
http://www.dndi.org/about-dndi/our-people/
Organisation Members: Swiss Alliance against Neglected Tropical Diseases (SANTD)
https://santd.ch/
German NTD network
https://dntds.de/members-observers.html
Global health Hub but again
https://www.globalhealthhub.de/de/ueber-den-hub/mitglieder
WIPO
https://www.wipo.int/members/en/organizations.jsp?type=NGO_INT