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BELGIAN BRAIN COUNCIL

Acronym: BBC

General Information

Identification Code: 712814020585-47
Website: [object Object]
Entity Form: ASBL
Registration Category: Non-governmental organisations, platforms and networks and similar
Registration Date: 2/9/2016
Last Update: 3/9/2024
EP Accredited Number: 0

Mission & Interests

Goals: The Belgian Brain Council (BBC) is a coordinating council formed by Belgian Universities, organisations in neurology, neurosurgery, psychiatry, basic brain research (neuroscience), patients organisations, pharmaceutical industries and medical devices companies. It therefore represents a vast network of patients, doctors and scientists. These stakeholders make it eminently suited to work in close partnership with the Belgian Federal government, the members of the Parliament and the Belgian MEPs. The BBC was founded in 2005 and has office in Brussels. BBC is also active as liaison between European Brain Council and the other National Brain Councils.
Interests Represented: Does not represent commercial interests
Interests:
  • Communication
  • Education and training
  • Public health
  • Regional policy
  • Research and innovation
Levels of Interest:
  • national
  • european

Activities

Main EU Legislative Proposals: The COVID-19 pandemic has amplified the role of the European Commission in health policy both at European and Member State level. The BBC's strategy is to ensure, in coordination with the European Brain Council and with the support of DG Santé, the establishment of a European Brain Plan. To achieve this strategy in line with the European Commission's mission to protect the health of Europeans, the BBC has engaged in exchanges with DG Connect and DG Health its willingness to include mental health and brain disorders as a priority but with the strong support and cooperation of the Member States through namely the BBC and other National Brain Councils. BBC as an NGO gathering 28 patient associations is currently working, in accordance with the DATA GOVERNANCE ACT, on the launching of a Data Altruistic Association (see video https://www.youtube.com/watch?v=RCzsNognTm0&t=37s).
Communication Activities: The BBC is an active partner in the coordination of Brain Awareness Week, a global event with which the BBC has often associated (i.e. through STOA and before the pandemic) the European Parliament both in Brussels and in Strasbourg. On the occasion of the recent kick-off meeting (28 March 2022) of an Erasmus+ project "Care4Autism" coordinated by the BBC, we involved Ms Radka Maxova, MEP who presented the EP's activities in the field of autism. On 10 May 2022 the 8th NBC Academy took place, and focused on the development and harmonisation of different national brain plans in which the BBC is an active partner. BBC is participating in the campaign "Pledge for Science" coordinated by the European Brain Council. This campaign is calling for the prioritisation of brain research & innovation in the EU. This campaign is a response to recent policy developments, particularly those with possible implications for health and research – including a recent European Citizens’ Initiative on “Save Cruelty Free Cosmetics – Commit to a Europe Without Animal Testing”, which received over one million signatures, triggering a public hearing in the European Parliament (to take place on 25 May). EBC issued a separate statement supported by 58 organisation and 3678 sIgnatures (see https://www.braincouncil.eu/pledge-for-science-brain-research-and-innovation-in-the-eu/). In May 14 and 15 2024, BBC is organizing a European symposium" Are data the future for a better Brain and Mental Health" in which DG Connect and DG Santé will participate (see programme at https://www.braincouncil.be/symposium).
Inter-institutional or Unofficial Groupings: Disability,Artificial intelligence and digital,Welfare and conservation of animals

Head Office

Address: Rue d'Egmont 11
Post Code: 1000
City: Bruxelles
Country: BELGIUM
Phone: [object Object]

EU Office

Address: Rue d'Egmont 11
Post Code: 1000
City: Bruxelles
Country: BELGIUM
Phone: [object Object]

Financial Data

New Organisation: false
Closed Year: [object Object]
Current Year: [object Object]

Membership Information

Members10 Percent: 0
Members25 Percent: 2
Members50 Percent: 1
Members75 Percent: 0
Members: 3
Members F T E: 1
Info Members: BBC is an ASBL run by volunteers without salary, just compensation for travel. Secretarial help is made in collaboration with European Brain Council. BBC also enrolled regularly trainees granted by EU4U.

Structure

Structure Type: Structure
Is Member Of: Patients Associations (28): 1) A.P.E.P.A. (https://autisme-belgique.wixsite.com/apepa) 2) ABMM (https://www.telethon.be) 3) Aidants proches http://aidants-proches.be 4) Alzheimer Liga Vlaanderen (http://www.alzheimerliga.be) 5) Alzheimer Belgique (http://www.alzheimerbelgique.be) 6) APTES-Belgique (http://aptes-belgique.be) 7) Association Parkinson (http://www.parkinsonasbl.be) 9) Belgique Acouphènes ASBL(http://www.belgiqueacouphenes.be) 8) Ligue Alzheimer ASBL (http://www.alzheimer.be) 10) Centre Harvey Cushing (http://harvey-cushing-center.be/fr/) 11) Werkgroep-Hersentumoren(http://www.wg-hersentumoren.be/) 12) U.P.B.S.N.P.-B.B.G.S.K. (www.neuro.be/bspn) 13) Ligue nationale belge de la sclérose en plaques (http://www.ms-sep.be) 14) Vlaamse Liga N.A.H. VZW (http://www.vlaamseliganah.be/) 15) Mouvement national Vie Libre (www.vie-libre.be) 16) UPS & DOWNS VZW (www.upsendowns.be/) 17) Organisation for the understanding of cluster headache (www.ouch-belgium.be) 19) EPIONI Greek Carers* Network (https://epioni.gr/fr) 20) A.N.E.I.D.E. Association Neurologiques d'Entraide et d'Informations de Dinant et Environs. 21) WHIPLASH VZW (www.vzw-whiplash.be) 22) ADHD-ASC-Dyslexia Family Ressources Brussels (www.adhd-edu.be/WEB) 23) DMLA Dégénérescence de la macula liée à l'âge (www.dmla.be) 24) CAN CE-TU ASBL (www.cance-tu-asbl.eu) 22) A.B.M.M. Association Belge contre les Maladies neuro- Musculaires (www.abmm.be) 23) Belgische Vereniging voor Dystoniepatiënten VZW (www.dystonie.be) 24) Ligue Huntington francophone Belge (http://huntington.be) 25) Action Parkinson (www.actionparkinson.be) 26) Ligue belge contre les céphalées 27) Vie Libre (www.vie-libre.be) 28) Vlaamse Parkinson Liga (www.parkinsonliga.be) Scientific Societies (26) 1) Belgische Vereniging voor Neurochirurgie VZW (www.bsn.be) 2) Société Royale de Médecine Mentale de Belgique (http://www.srmmb.org) 3) Belgian Pain Society ASBL (http://www.belgianpainsociety.org) 4) Belgian society for Neuroscience (https://sites.google.com/site/belgiansocietyforneuroscience/) 5) ACTE Autism in Context (https://acte.ulb.be/index.php/en/) 6) Belgian Headache Society (www.neuro.be/bhs) 7) GBESP-BSGMS Groupe Belge d'Etude de la Sclérose en Plaques ASBL (www.bsgms.org) 8) Vlaamse Liga tegen Epilepsie VZW (www.epilepsieliga.be) 9) Ligue francophone belge contre l’épilepsie (http://www.ligueepilepsie.be/) 10) Belgian Association for Sleep Research and Sleep Medicine (belsleep.org) 11) Breinwijzer VZW (www.breinwijzer.be) 12) Belgian Society for Pediatric Neurology (www.neuro.be/bspn/) 13) E.P.L.C. Ensemble pour le Cerveau 14) APB Association Pharmaceutique Belge (www.apb.be) 15) Vlaamse Vereniging voor Psychiatrie (http://www.vvp-online.be) 16) Belgian Stroke Council (https://belgianstrokecouncil.be/fr/) 17) Center for Neuroscience (VUB) 18) Centre Ressources Lésion Cérébrale 19) COMA science group 20) Fondation Charcot Stichting 21) Henallux 22) Human Body in Motion 23) IoNS-UCL 24) Leuven Brain Institute 25) Le Ressort 26) URPHYM Pharmaceutical Industry & Medical devices (29) 1) AbbVie 2) Alnylam 3) Allergan 4) Almirall 5) Biogen 3) Pfizer 4) Lucimed 5) EISAI 6) Novartis 7) Boston scientific 8) Merck 9) UCB 10) SERVIER 11) UCB Pharma 12) Lundbeck 13) Sanofi 14) TEVA 15) Boehringer-Ingelheim 16) Elli Lilly 17) Bayer 18) Roche 19) Boston Scientific 20) Janssen Benelux 21) Livanova 22) Lucimed 23) Medtronic 24) MSD Belgium 25) Bristol Myers Squibb 26) TAKEDA
Organisation Members: European Brain Council (www.braincouncil.eu), Conseil Français du Cerveau (conseilfrancaisducerveau.org), Spanish Brain Council (www.consejocerebro.es), Norwegian Brain Council (www.hjerneradet.no), Serbian Brain Council (abc.ac.rs/), Croatian Brain Council (him.hr), European Federation of Neurological Association, Pain Alliance Europe, German Brain Council (https://braincouncil.de),