eujobs.coEU jobs in brussels
Post a JobHeadhunter

Associazione Apnoici Italiani ETS

Acronym: AAI ETS

General Information

Identification Code: 069810551569-10
Website: [object Object]
Entity Form: Associazione di Promozione Sociale non giuridica
Registration Category: Non-governmental organisations, platforms and networks and similar
Registration Date: 10/14/2023
Last Update: 2/6/2024
EP Accredited Number: 0

Mission & Interests

Goals: The Associazione Apnoici Italiani APS is a social promotion patient association founded and run by patients with Sleep Apnoea (OSA- Sleep Apnoea) and Sleep Disorders. Its main mission is to spread knowledge about this under-diagnosed and under-treated condition. There are an estimated 34 Million children and adults in Europe who are affected without knowing it, only about 10% of these are diagnosed and in treatment. Failure to diagnose and treat, in addition to causing a low quality of life, can cause these patients to develop other very disabling diseases such as Type 2 Diabetes, Atrial Fibrillation, Hypertension, and Stroke. We are active in protecting patients' rights, particularly for risks related to ventilatory therapies referred to in the recent European Field Safety Notices and for regulations related to fitness to drive for patients with Sleep Apnoea. A patient on therapy has a cost/annual cost of about 1,500 euros; a patient not on therapy has direct and indirect.
Interests Represented: Does not represent commercial interests
Interests:
  • Consumers
  • Employment and social affairs
  • Institutional affairs
  • Public health
Levels of Interest:
  • european
  • global
  • national

Activities

Main EU Legislative Proposals: Medical Device Regulation 2017/745; European Union directive 2014/85/EU on driver licensing in obstructive sleep apnoea:
Communication Activities: With reference to the medical device safety alert, we participated in multiple meetings with DG Sante for the Philips case, which is still open to date. Dg Sante - Medical Device Coordination Group - Philips Task Force
Inter-institutional or Unofficial Groupings: N/A

Head Office

Address: Via di Bravetta, 444
Post Code: 00164
City: Roma
Country: ITALY
Phone: [object Object]

EU Office

Address: Via di Bravetta, 444
Post Code: 00164
City: Roma
Country: ITALY
Phone: [object Object]

Financial Data

New Organisation: false
Closed Year: [object Object]
Current Year: [object Object]
Complementary Information: Apnoici Italiani Association, has not received any public funds or from the European community. It had in 2022 a total budget of 125.454 euro. This Budget includes a cash surplus from the previous fiscal year 2021, a contribution from patients members through tax returns called 5 per thousand, liberal donations from Medtech and pharmaceutical companies and sponsorships from Medtech companies. Our financial statements are transparent and available at: www.apneedelsonno.it/chi-siamo/bilanci/

Membership Information

Members10 Percent: 2
Members25 Percent: 0
Members50 Percent: 0
Members75 Percent: 0
Members: 2
Members F T E: 0.20000000298023224

Structure

Structure Type: Structure
Is Member Of: https://europeanlung.org/en/
Organisation Members: https://europeanlung.org/en/