Associazione Apnoici Italiani ETS

Acronym: AAI ETS

General Information

Identification Code: 069810551569-10

Website: www.apneedelsonno.it

Entity Form: Associazione di Promozione Sociale non giuridica

Registration Category: Non-governmental organisations, platforms and networks and similar

Registration Date: 10/14/2023

Last Update: 2/6/2024

Mission & Interests

Goals: The Associazione Apnoici Italiani APS is a social promotion patient association founded and run by patients with Sleep Apnoea (OSA- Sleep Apnoea) and Sleep Disorders. Its main mission is to spread knowledge about this under-diagnosed and under-treated condition. There are an estimated 34 Million children and adults in Europe who are affected without knowing it, only about 10% of these are diagnosed and in treatment. Failure to diagnose and treat, in addition to causing a low quality of life, can cause these patients to develop other very disabling diseases such as Type 2 Diabetes, Atrial Fibrillation, Hypertension, and Stroke. We are active in protecting patients' rights, particularly for risks related to ventilatory therapies referred to in the recent European Field Safety Notices and for regulations related to fitness to drive for patients with Sleep Apnoea. A patient on therapy has a cost/annual cost of about 1,500 euros; a patient not on therapy has direct and indirect.

Interests Represented: Does not represent commercial interests

Interests:

Consumers
Employment and social affairs
Institutional affairs
Public health

Levels of Interest:

european
global
national

Activities

Main EU Legislative Proposals: Medical Device Regulation 2017/745; European Union directive 2014/85/EU on driver licensing in obstructive sleep apnoea:

Communication Activities: With reference to the medical device safety alert, we participated in multiple meetings with DG Sante for the Philips case, which is still open to date. Dg Sante - Medical Device Coordination Group - Philips Task Force

Inter-institutional or Unofficial Groupings: N/A

Head Office

Address: Via di Bravetta, 444

Post Code: 00164

City: Roma

Country: ITALY

Phone:

Indic Phone: 39

Phone Number: 0694538260

EU Office

Address: Via di Bravetta, 444

Post Code: 00164

City: Roma

Country: ITALY

Phone:

Indic Phone: 39

Phone Number: 0694538260

Financial Data

Closed Year:

Start Date:

End Date:

Funding Sources:

Donations
Other

Other Source Info: Italy revenue agency, contribution from 5per thousand of our members Medtech company: Resmed LTD Italy Fisher&Paykel MedicAir Respiraire Olympus Pharma company: Biprojet Italy Jazz Pharmaceutical Italy

Contributions:

Amount: 0
Currency: €
_id:
Buffer:
0: 104
1: 64
2: 61
3: 46
4: 158
5: 212
6: 182
7: 32
8: 86
9: 90
10: 36
11: 88
Amount: 0
Currency: €
_id:
Buffer:
0: 104
1: 64
2: 61
3: 46
4: 158
5: 212
6: 182
7: 32
8: 86
9: 90
10: 36
11: 89

Total Budget: 69031

Grants:

Current Year:

Grants:

Complementary Information: Apnoici Italiani Association, has not received any public funds or from the European community. It had in 2022 a total budget of 125.454 euro. This Budget includes a cash surplus from the previous fiscal year 2021, a contribution from patients members through tax returns called 5 per thousand, liberal donations from Medtech and pharmaceutical companies and sponsorships from Medtech companies. Our financial statements are transparent and available at: www.apneedelsonno.it/chi-siamo/bilanci/