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Asociatia Daruieste Aripi

Acronym: ADA

General Information

Identification Code: 042083647420-89
Website: [object Object]
Entity Form: Non-governmental organisation (non-profit)
Registration Category: Non-governmental organisations, platforms and networks and similar
Registration Date: 8/23/2022
Last Update: 10/23/2023
EP Accredited Number: 0

Mission & Interests

Goals: Our Association, established in 2013 in Constanta (SE Romania) has its main goal the improvement of medical services for children with cancer. We assist or finance the reconstruction of public hospital infrastructure, and we donate medical equipment to public hospital wards. We also launched the National Childhood Cancer Registry, Romania’s only national pediatric oncology database currently in use. This project was awarded the European Citizen's Prize 2020 by the European parliament. We seek to improve the overall quality of life for children and their families both through our ongoing hospital-based home care program for children with cancer and other serious diseases, and also through campaigns aimed at increasing their quality of life. We have been certified as an organisation of "public utility" by the Romanian Government in September 2022. Further information about our projects is available at https://www.daruiestearipi.ro/en/
Interests Represented: Does not represent commercial interests
Interests:
  • Public health
  • Research and innovation
Levels of Interest:
  • european
  • sub-national
  • national

Activities

Main EU Legislative Proposals: Since 2018, our organization supports the development of the Romanian Childhood Cancer Registry (RCCR) in a strategic partnership with the Romanian Society of Pediatric Oncology-Hematology. RCCR is an essential resource to survival chances improvement for the children with cancer in Romania, being the main objective source of information on their needs and for the planning of Pediatric Oncology (PO) services development in our country. For the first time, Romanian health officials e.g. the Ministry of Health became aware of the incidence and survival rate for child cancer at national level. In October 2018, the Romanian Childhood Cancer Registry was accepted for affiliation by the European Network of Cancer Registries (www.encr.eu) an indication that RCCR meets the quality criteria imposed by ENCR for cancer registries, thus allowing Romania to participate with actual data in international statistics on childhood cancer.
Communication Activities: Our projects and respective results are disseminated primarily at national level. The Association delivered a project presentation at the Regional Meeting of Pediatric Onco-hematology in Central and Eastern Europe (October 2018) and at the JARC Joint Workshop (March 2019). This was a highly appreciated communication opportunity, and opened the perspective of a cooperation for optimizing the registration of pediatric cancers at Central and Eastern European level. Ultimately, our project “Developing The Romanian Childhood Cancer Registry” was awarded the European Citizen’s Prize 2020 by The European Parliament.
Inter-institutional or Unofficial Groupings: Cancer

Head Office

Address: Str. Miron Costin nr. 36, ap. 4
Post Code: 900682
City: Constanta
Country: ROMANIA
Phone: [object Object]

EU Office

Address: Calea Floreasca nr. 91-111Bloc F1, Tronson 1, et. 1, ap. 2, sector 1
Post Code: 014455
City: Bucharest
Country: ROMANIA
Phone: [object Object]

Financial Data

New Organisation: false
Closed Year: [object Object]
Current Year: [object Object]

Membership Information

Members10 Percent: 2
Members25 Percent: 0
Members50 Percent: 0
Members75 Percent: 0
Members: 2
Members F T E: 0.20000000298023224

Structure

Structure Type: Structure
Is Member Of: Affiliations: Childhood Cancer International (charity), European Cancer Patient Coalition, American Lebanese Syrian Associated Charities (ALSAC), and other national bodies. Further details are available on the Association webpage at https://www.daruiestearipi.ro/en/partnerships-affiliations/
Organisation Members: We are strategic partners for the Romanian Society for Onco-Hematological Pediatrics, and partners of the Oncological Institute in Bucharest. Other partnerships at national level are listed at https://www.daruiestearipi.ro/en/partnerships-affiliations/