Asociación Española de laboratorios Huérfanos y Ultrahuérfanos
Acronym: AELMHU
General Information
Identification Code: 429216742750-40
Website: [object Object]
Entity Form: Asociación
Registration Category: Trade and business associations
Registration Date: 5/12/2021
Last Update: 8/28/2023
EP Accredited Number: 0
Mission & Interests
Goals: Aelmhu is a non-profit association which joins pharmaceutical and biotechnological companies that share the common goal of discovering, researching, developing and commercializing innovative therapies to improve the lives of patients who suffer from rare diseases.
Mission:Contributing to improve the situation of people affected by rare diseases, promoting knowledge of these pathologies and the recognition of the therapeutic and social value of orphan drugs.
Interests Represented: Promotes their own interests or the collective interests of their members
Interests:
- Public health
Levels of Interest:
- national
Activities
Main EU Legislative Proposals: We are interested in participating in the update of the Orphan and Pediatric Drug Regulations.
Communication Activities: Annual and quarterly report on access to orphan drugs in Spain
Inter-institutional or Unofficial Groupings: N/A
Head Office
Address: C/ Muntaner 292, 1º2ª
City: Barcelona
Country: SPAIN
Phone: [object Object]
EU Office
Address: Paseo de la Castellana 135 planta 7ª
Post Code: 28046
City: Madrid
Country: SPAIN
Phone: [object Object]
Financial Data
New Organisation: false
Closed Year: [object Object]
Current Year: [object Object]
Membership Information
Members10 Percent: 2
Members25 Percent: 0
Members50 Percent: 0
Members75 Percent: 0
Members: 2
Members F T E: 0.20000000298023224
Structure
Structure Type: Structure
Is Member Of: https://aelmhu.es/index.php/quienes-somos/laboratorios
Organisation Members: www.aelmhu.es