Asociación Española de laboratorios Huérfanos y Ultrahuérfanos
Acronym: AELMHU
General Information
Identification Code: 429216742750-40
Website: http://www.aelmhu.es
Entity Form: Asociación
Registration Category: Trade and business associations
Registration Date: 5/12/2021
Last Update: 8/28/2023
Mission & Interests
Goals: Aelmhu is a non-profit association which joins pharmaceutical and biotechnological companies that share the common goal of discovering, researching, developing and commercializing innovative therapies to improve the lives of patients who suffer from rare diseases.
Mission:Contributing to improve the situation of people affected by rare diseases, promoting knowledge of these pathologies and the recognition of the therapeutic and social value of orphan drugs.
Interests Represented: Promotes their own interests or the collective interests of their members
Interests:
- Public health
Levels of Interest:
- national
Activities
Main EU Legislative Proposals: We are interested in participating in the update of the Orphan and Pediatric Drug Regulations.
Communication Activities: Annual and quarterly report on access to orphan drugs in Spain
Inter-institutional or Unofficial Groupings: N/A
Head Office
Address: C/ Muntaner 292, 1º2ª
City: Barcelona
Country: SPAIN
Phone:
Indic Phone: 34
Phone Number: 681384549
EU Office
Address: Paseo de la Castellana 135 planta 7ª
Post Code: 28046
City: Madrid
Country: SPAIN
Phone:
Indic Phone: 34
Phone Number: 681384549
Financial Data
Closed Year:
Start Date:
End Date:
Funding Sources:
Contributions:
Total Budget: 0
Grants:
Current Year:
Grants:
Membership Information
Members10 Percent: 2
Members: 2
Members F T E: 0.20000000298023224
Structure
Structure Type: Structure
Is Member Of: https://aelmhu.es/index.php/quienes-somos/laboratorios
Organisation Members: www.aelmhu.es
Current Job Opportunities
Officer - Public health
Asociación Española de laboratorios Huérfanos y Ultrahuérfanos
juniorBrussels, BelgiumFull-time-time
Posted: 9/23/2025
mid-levelBrussels, Francefull-time
Posted: 8/21/2025