Alliance for Pulmonary Hypertension IVZW Internationale Vereniging Zonder Winstoogmerk
Acronym: AfPH
General Information
Identification Code: 463396153004-31
Website: www.allianceforpulmonaryhypertension.com
Entity Form: Not for profit
Registration Category: Non-governmental organisations, platforms and networks and similar
Registration Date: 2/26/2024
Mission & Interests
Goals: The Alliance for Pulmonary Hypertension's mission is the sharing of knowledge and expertise about pulmonary hypertension, a severe lung condition, some forms of which are rare and life threatening. The organisation has set up a Pulmonary Hypertension Knowledge Sharing Platform, a dedicated hub for information of pulmonary hypertension. This platform features is a digital library, with over 500 resources in different languages and formats, a news portal, consistently updated with news in the pulmonary hypertension field, and a calendar of the main international scientific events. The Alliance for Pulmonary Hypertension also organises educational live events (six in 2023), the slide and recordings of which are also present in the platform.
Interests Represented: Does not represent commercial interests
Interests:
- Digital economy and society
- Education and training
- Public health
Levels of Interest:
- global
Activities
Main EU Legislative Proposals: Rare diseases, organ donation and transplant, European Medicines Agency activities, European Parliament Lung Health Group, European reference Network on Rare Lung Diseases (ERN-LUNG)
Communication Activities: Reporting of any EU activities that are directly or indirectly to pulmonary hypertension: rare disease, organ donation and transplant, new marketing authorisations from EMA
Inter-institutional or Unofficial Groupings: N/A
Head Office
Address: Washingtonstraat 40
Post Code: 1050
City: Elsene
Country: BELGIUM
Phone:
Indic Phone: 32
Phone Number: 3299214217
EU Office
Address: Washingtonstraat 40
Post Code: 1050
City: Elsene
Country: BELGIUM
Phone:
Indic Phone: 32
Phone Number: 3299214217
Financial Data
Closed Year:
Start Date:
End Date:
Funding Sources:
- Donations
- Member's contributions
- Other
Other Source Info: The Alliance for Pulmonary Hypertension in 2023 received
Membership fees € 680,00
Donations from member associations € 5.000,00
Total € 5.680,00
Contributions:
Total Budget: 5680
Grants:
Current Year:
Grants:
Membership Information
Members10 Percent: 1
Members: 1
Members F T E: 0.10000000149011612
Structure
Structure Type: Structure
Is Member Of: ERN-LUNG Patient Advisory Group
European Lung Foundation Pulmonary Hypertension Patient Advisory Group
World Symposium on Pulmonary Hypertension 2024 Task Force n° 1 on Patient Perspectives
PHA Europe
European Society for Organ Transplant Extended Education Committee
European Society of Cardiology Patient Forum
Organisation Members: European Lung Foundation Patient Organisation Network
European Society for Organ Transplant- European Transplant Patient Organisation Alliance - ESOT-ETPO Alliance
Current Job Opportunities
Policy Intern at Alliance for Pulmonary Hypertension
Alliance for Pulmonary Hypertension IVZW Internationale Vereniging Zonder Winstoogmerk
internBrussels, BelgiumFull-time-time
Posted: 9/23/2025
mid-levelBrussels, Francefull-time
Posted: 8/21/2025