ALAN asbl-Maladies Rares Luxembourg
Acronym: ALAN
General Information
Identification Code: 961973546240-11
Website: [object Object]
Entity Form: Non Profit Organization
Registration Category: Non-governmental organisations, platforms and networks and similar
Registration Date: 4/26/2022
Last Update: 4/19/2024
EP Accredited Number: 0
Mission & Interests
Goals: Fostering an environment for people living with a rare disease to realize their full potential through recognition, equal opportunities and improved quality of life.
Interests Represented: Promotes their own interests or the collective interests of their members
Interests:
- Employment and social affairs
- Public health
- Research and innovation
Levels of Interest:
- national
- european
Activities
Main EU Legislative Proposals: Any policies and legislative proposals related to rare diseases and public health.
Communication Activities: Communications, open letters, and conferences related to rare diseases.
Inter-institutional or Unofficial Groupings: N/A
Head Office
Address: 13 Rue de l'Innovation
Post Code: L-1896
City: Kockelscheuer
Country: LUXEMBOURG
Phone: [object Object]
EU Office
Address: 13 Rue de l'Innovation
Post Code: L-1896
City: Kockelscheuer
Country: LUXEMBOURG
Phone: [object Object]
Financial Data
New Organisation: false
Closed Year: [object Object]
Current Year: [object Object]
Membership Information
Members10 Percent: 1
Members25 Percent: 0
Members50 Percent: 0
Members75 Percent: 0
Members: 1
Members F T E: 0.10000000149011612
Structure
Structure Type: Structure
Is Member Of: EDS Letzebuerg- https://edsletzebuerg.lu/2/
ALEAC- https://www.alaec.lu/
ALH-https://www.alh.lu/
Individual members, people living with a rare disease in Luxembourg
Organisation Members: EURORDIS