ALAN asbl-Maladies Rares Luxembourg

Acronym: ALAN

General Information

Identification Code: 961973546240-11

Website: www.alan.lu

Entity Form: Non Profit Organization

Registration Category: Non-governmental organisations, platforms and networks and similar

Registration Date: 4/26/2022

Last Update: 4/19/2024

Mission & Interests

Goals: Fostering an environment for people living with a rare disease to realize their full potential through recognition, equal opportunities and improved quality of life.

Interests Represented: Promotes their own interests or the collective interests of their members

Interests:

Employment and social affairs
Public health
Research and innovation

Levels of Interest:

national
european

Activities

Main EU Legislative Proposals: Any policies and legislative proposals related to rare diseases and public health.

Communication Activities: Communications, open letters, and conferences related to rare diseases.

Inter-institutional or Unofficial Groupings: N/A

Head Office

Address: 13 Rue de l'Innovation

Post Code: L-1896

City: Kockelscheuer

Country: LUXEMBOURG

Phone:

Indic Phone: 352

Phone Number: 2661121

EU Office

Address: 13 Rue de l'Innovation

Post Code: L-1896

City: Kockelscheuer

Country: LUXEMBOURG

Phone:

Indic Phone: 352

Phone Number: 2661121

Financial Data

Closed Year:

Start Date:

End Date:

Funding Sources:

Contributions:

Total Budget: 0

Grants:

Current Year:

Grants:

Membership Information

Members10 Percent: 1

Members: 1

Members F T E: 0.10000000149011612

Structure

Structure Type: Structure

Is Member Of: EDS Letzebuerg- https://edsletzebuerg.lu/2/ ALEAC- https://www.alaec.lu/ ALH-https://www.alh.lu/ Individual members, people living with a rare disease in Luxembourg

Organisation Members: EURORDIS